[Pyr2]

Hi, I have been having very distressing occipital headaches with awful burning shoulders and neck for 6 months that travels down back of my arm esp. when I lie down (no tingling or numbness though). I have to sleep on my stomach. I have had 3 MRIs a lumbar puncture and will have another cervical mri this week.

Along with this, I seem to be having nerve misfirings all over my body, especially my head. However, none of them actually rise to the level of being termed a true cranial neuropathy. For example, I have throat and tonsil pain but can still swallow. I have ear pressure and pain and tightness in the area, however, I can still hear. I have teeth and gum aches, but can still open my jaw. I have pain behind the eyes, but no double vision, etc. However, I am convinced these are all related to nerves. I have no sinus cold or other things to cause these. I also am having random muscle jumps all over my body and some buzzing sensations and occasional pulling feeling in my palms and soles and occasional tingling.

Nothing "organized" enough to be called a neuropathy though.

I do have lymes but hate to blame everything on that. Although my spinal fluid tested negative, I am blood positive confirmed CDC. I also have a positive ANA but no confirmed rheumy disease. My neck is also a total mess (spinal cord flattening, severe stenosis, but this is all at c6-c7 levels not sure if its enough to affect the head).

Any ideas? Is it worth getting an EMG? I really have no discernable pattern!!