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Old 08-31-2020, 09:11 PM #1
shondav1 shondav1 is offline
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Default New Diagnosed SFN with Full Body Allodynia Help!!!!

I have been struggling with neuropathy since March due to nerve impingement in my ankle. In late July out of no where 20 minutes after taking a shower was in so much pain like I had been pelted with rocks. I was in so much pain and anything that touched my body caused more pain. Finally talked to the DR. via phone mid Aug. He said I have SFN with Allodynia and prescribed gabapentin until I was It has helped some but if I take a shower or bath I'm still in pain. If certain clothes and the bed sheets still hurt. Takes a week or more to calm down

What have worked for you for pain, clothes, bathing, etc.? Any advise welcomed.
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Old 08-31-2020, 09:46 PM #2
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From what you wrote, you might want to explore our RSD/CRPS forum also, just to compare. To be sure you have the correct diagnosis and best care..
https://www.neurotalk.org/reflex-sym...rsd-and-crps-/

many years ago there was a lady that had RSD/nerve (mis)diagnosis for her ankle and it was eventually fixed by a chiropractor, an impinged nerve...
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Old 09-01-2020, 09:25 AM #3
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Thanks for the information. I will definitely look into it
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Old 09-03-2020, 07:41 PM #4
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Do you have any suggestions for me as to what to do till I'm able to see a chiropractor
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Old 09-04-2020, 05:38 PM #5
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Hi, I have this on and on too. I have not found a lot that helps 100% but I do use aspercream [roll on] with lidocaine and this helps me somewhat.
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Old 09-09-2020, 11:14 PM #6
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Originally Posted by Dexter454 View Post
Hi, I have this on and on too. I have not found a lot that helps 100% but I do use aspercream [roll on] with lidocaine and this helps me somewhat.


I purchased some a few days ago it helped. Do you use it daily?
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Old 09-11-2020, 05:16 PM #7
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I use it when ever i get a flare, mine usually comes and goes especially if i get stressed for some reason it will bring it on. At first when it started i was using it daily but it has calmed down a bit so i don't have to do a dailly application. They also have some that comes in a little bottle that comes out in a lotion type of application [also aspercream/lidocain] i use it that way too if i have an area on my skin i want to cover a little bit heavier. I am glad it helps you a little. Also after using it a few times on the same part of the body i have also found that making sure you clean the older stuff off before you put the new stuff on helps penetrate the skin better.
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Old 05-04-2024, 12:00 AM #8
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Default Allodynia

Quote:
Originally Posted by shondav1 View Post
I have been struggling with neuropathy since March due to nerve impingement in my ankle. In late July out of no where 20 minutes after taking a shower was in so much pain like I had been pelted with rocks. I was in so much pain and anything that touched my body caused more pain. Finally talked to the DR. via phone mid Aug. He said I have SFN with Allodynia and prescribed gabapentin until I was It has helped some but if I take a shower or bath I'm still in pain. If certain clothes and the bed sheets still hurt. Takes a week or more to calm down

What have worked for you for pain, clothes, bathing, etc.? Any advise welcomed.
I have the same exact problem especially with clothes and sheets. Sadly it's usually 4 to 6 times a day I have to change clothes to feel some relieft and on top of it all I can see the white flakes coming off of my skin and staying on the inside of my clothes. Have you found anything else that works yet? I've been given the gabapentin by my dermatologist and told to use prescribed lidocaine patches and I've done the gabapentin but haven't done the lidocaine patches consistently. I never thought I would find someone else who's going through the exact same thing I am.
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Old 05-04-2024, 01:42 PM #9
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Default Have you been examined--

--for full body small-fiber neuropathy possibilities?
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Old 05-04-2024, 03:48 PM #10
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Quote:
Originally Posted by glenntaj View Post
--for full body small-fiber neuropathy possibilities?
I was given a referral to a rheumatologist in the capital of our state since it's only 45 min away from where I live. And the rheumatologist examined me for fibromyalgia or any other rheumatology reason and determined that I didn't have it. And I was also sent to the neurologist and gave me a nerve conduction test which came out normal and showed no findings of peripheral neuropathy or any other emg findings on the test and suggested I begin taking a multivtamin, which I haven't done. But I was sent to a dermatologist about 8 months ago and 6 months ago determined that I had extremely dry skin as well dermatitis. And the next appointment the dryness was getting a little better but I was still having horrible pain. So, the pain she believed was coming from the allodynia and gave me a prescription of gabapentin for 300 mg tablets to take 1 to 3 times a day. as well as giving me lidocaine patches and I've consistently done the gabapentin but not consistently the lidocaine patches as well as keeping up with moisturizing my skin.
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