One of my worst triggers is driving or riding in a car....the vibrations set my feet and hands off every time.

If I don't listen to my body it winds up stopping me anyway....because when it wants me to stop and I don't....the ole feet stop working

The soles of both feet stay slightly swollen, especially the pad of each foot....and the skin it so tight on my feet it drives me crazy. Or crazier than I already am Stinging between my toes has been my most recent symptom...nice right ?

Debi from Georgia

I try to remain positive, I have "good days" or "other days". I have tried to remove "bad days" from my vocabulary.

My PN appeared after they woke me up from an induced coma for treatment for legioneers disease 3+ years ago. I started complaining the 1st day they moved me from ICU to a regular room. The Dr's were as confused as I was, they were like Mike you haven't been on your feet for almost 3 weeks we don't know why you are in pain.

At first they thought it was a side effect and would go away in 6 months. After 18 months I sort of realized it wasn't.

I now take 1,200mg of Gralise once a day, is it better than Gabapentin I still don't know. The biggest benefit I see is I don't have that spike in pain during the afternoon when it was time for the 3PM pill. I also take Fish oil and vitamin's B & D.

What I know is:
Shoes & socks are evil, Birkentock clogs or sandals are my friends.
Sometimes blankets hurt.
I try to go the the gym at least 3X a week (never did this before I was sick). I do some light weights and low impact cardio (bike & eliptical). I've started doing a water aerobics class. Even "bad days" I try to go. There are many days I am borderline miserable when I get there and I feel some relief when I am done, just as long as I don't have to put my tennis shoes back on after I shower

I am an almost 60 male, overweight but healthy and will continue to try to be positive and moving foward.

Good Luck & I hope you find something that provides you relief to get through the "other days".

I have had RSD since 2006 of course by now it is full body. Recently thing's have been going on that are very different! For the last 6 month's or so I have been having a lot of change's. My worse one is I have been falling down a lot and not remembering how it happened? All of a sudden I will (not sure how to say this but) come to and will be laying on the floor or where ever I fell the only reason I know something happened is by all the bump's and bruised area's on me? A lot of blood at time's also. I have also noticed that I have been having problem's with dexterity issue's. One example would be when I try to turn page's when I am reading. I have also been having problem's with my short term memory! I saw my Dr. last week and I am going to get a MRI along with another electromyography or (EMG/NCV) So I guess my question is has anyone been thru what I am going thru now? Please let me know I am so scared! Prayer's to all! Breezy55