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Old 04-22-2014, 07:53 AM #1
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Originally Posted by mrsD View Post
That is your choice, Karen. But I wanted to go on the record that I don't believe that high a dose is necessary.

Well what happened was - the same obgyn doc who told me that the progesterone "will help your neuropathy," also told me that to aviod taking estrogen (which is more dangerous) to eat all this soybean stuff per day and soy milk. At first all seemed fined and I figured it would be no problem with the neuropathy - the soy cleared up the menopausal brain fog wonderfully so I was pretty happy - although it got old kinda quck eating all that soy bean per day....

Then, after a bit of time went by, when I ingested it, particuarly the soy milk, wham - all of a sudden the nerve pain in the legs would start up. Soy is a phytoestrogen, one of the most powerful, if not THE most powerful... and it was estrogen dominance that was at least partly the culpret for my PN - as proven by additional relief from my PN symptoms that I receieved nearly immediately when I went on progesterone... which reduces estrogen dominance.

So on the one hand, same doc told me - progesterone helps neuropathy, and although that turned out to be completely true, also told me but take soy to help your falling estrogen levels - soy a phytoestrogen, increases estrogen dominance which works against the relief I was getting from the progesterone.

When my neuropathy seems to be able to tolerate something for a while, then whatever the new things is builds up in my system and beings to cause additional neuropathy symptoms, it takes me a while to realize - Oh, ok, now the soy is causing more problems my neuropathy for me than it's worth for me in getting relief from the menopausal symptoms.

During that period of not realizing what was increasing the leg nerve pain all of a sudden, I was taking the maximum benfotiamine permitted, four, 250 mg per day, that according to the instructions on the bottle, at least (so much as I can believe that) which is the Life Extention brand (by the way). I felt better doing that than taking drugs for the pain, because when the pain went away when I took the benfotiamine that made me feel proud that I was managing neuropathy symptoms with supplements.

Also, just to note, I finally (at some point) took the advice that I had seen so many times at this site from many others, and began taking 200 - 600 mg alpha lipoic acid and had even further reduction from nerve pain.

Also, Mrs. D - when I wanted to splurge on chocolate or some other neuropathy trouble making goody - I will pop my supplements before doing so hoping to minimize the increase in neuropathy symptoms - although I would still wind up paying for that slurge with at least some pricking in the toes.

Again, the Diatomaceous Earth has taken all that chocolate craving away from me, which is part of the wonderful relief I have recieved from that.

Just a story of mine as to how I came to take so much Benfotiamine, just one example too, there have been others; along the same lines as this one, just different supplements I tried that didn't agree with my neuropathy.
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Old 04-24-2014, 08:36 AM #2
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I am starting my DE today. Right now, lol. I am starting with only 1/2 teaspoon as I have read for days on a couple forums about this and some people really have the herx/detox reaction with flu, headache, pains. I do not want this to irritate my feet too much so I am starting slow and small.
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Old 04-24-2014, 10:56 AM #3
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I am starting my DE today. Right now, lol. I am starting with only 1/2 teaspoon as I have read for days on a couple forums about this and some people really have the herx/detox reaction with flu, headache, pains. I do not want this to irritate my feet too much so I am starting slow and small.
No reason to rush - start small!!! I got the morning head ache for a couple of days but that was it. I'm not surprised - never done a detox ever before... so I figure I was probably pretty clumped up

Great luck to you with it!
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Old 04-24-2014, 11:58 AM #4
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Wow, I am so glad I decided to go back and read this thread from the first post. I clicked on the link in your very first post and read this:

Secondly, an unexpectedly dangerous compound to avoid is N-acetylcysteine (NAC), a high-priced product heavily recommended by alternative medical doctors and other health practitioners. NAC is a form of cysteine often recommended as a more powerful form of the much-needed amino acid L-cysteine or in lieu of glutathione, an antioxidant that is rarely effective in supplement form.66 Although dozens of journal articles support its short-term use as immunity booster and detoxifier, evidence is mounting of potential long-term harm. The NAC form of cysteine conceivably can poison vitalethine, a vital component needed to activate humoral immunity.67-69




I have an unopened bottle of NAC that I just bought and was going to start taking. Glad I read this post again. True or not true I think I will avoid it for now.
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Old 04-24-2014, 01:44 PM #5
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Quote:
Originally Posted by Stacy2012 View Post
Wow, I am so glad I decided to go back and read this thread from the first post. I clicked on the link in your very first post and read this:

Secondly, an unexpectedly dangerous compound to avoid is N-acetylcysteine (NAC), a high-priced product heavily recommended by alternative medical doctors and other health practitioners. NAC is a form of cysteine often recommended as a more powerful form of the much-needed amino acid L-cysteine or in lieu of glutathione, an antioxidant that is rarely effective in supplement form.66 Although dozens of journal articles support its short-term use as immunity booster and detoxifier, evidence is mounting of potential long-term harm. The NAC form of cysteine conceivably can poison vitalethine, a vital component needed to activate humoral immunity.67-69




I have an unopened bottle of NAC that I just bought and was going to start taking. Glad I read this post again. True or not true I think I will avoid it for now.
Take a look here:
http://neurotalk.psychcentral.com/post1065604-5.html
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Old 04-24-2014, 02:08 PM #6
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There are a lot of special things the world does not hear about that are amazing.

Not hearing about something does not negate validity. Maybe it is due to no big money to be made.

Just my opinion.

But as I said, I am not validating the info just sharing.
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Old 04-26-2014, 04:28 AM #7
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Default Compounding Pharmacy

There is a super knowledgeable compounding pharmacy near me. I called them up yesterday and asked them if they've ever heard about people ingesting food grade diatomacious earth? They said they always keep it in stock. Apparently lots of their customers ingest it routinely for all manner of ailments.
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