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Old 03-20-2014, 04:14 PM #1
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Default Eating Disorder Neuropathy???

It has been some time since my last post. I am in a serious hole and not sure how to climb out of it. My neuropathy is steadily worsening again. After a vacation in Florida to visit my parents, they convinced me that a possible cause of my symptoms (numb hands and feet, pain in feet and legs, constantly being cold, dizziness, fatigue, constipation, insomnia, irritability, etc.) could be the result of an eating disorder.

You see, I lost a lot of weight in college after being overweight for a few years. The healthy diet turned into being overly obsessive about being "fat" again. So, for about the past 25 years I have been on a continual restrictive diet and exercise rigorously. In the last few years, I have kept it in the low 90s and high 80s. I am 5'2" and usually weigh between 87 and 92 pounds. For years now people have commented on how excessively thin I am, although some tell me how great I am looking these days which makes me want to lose/maintain despite the concern of those closest to me.

Have any of you ever been diagnosed with some kind of nutritional neuropathy? Keep in mind my blood work has always come back with higher than normal vitamin levels. And there is no evidence of stress on kidneys or liver.

I decided to "self treat" for anorexia and rapidly increased my calories this past week with the goal of gaining 10 lbs and seeing if that helps. I have to tell you so far I feel WORSE. I am so tired and bloated and in pain. Hoping someone out there has had a similar experience before I venture out into the world of eating disorder forums.

Please help!
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Old 03-20-2014, 04:50 PM #2
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Originally Posted by cat1234 View Post
It has been some time since my last post. I am in a serious hole and not sure how to climb out of it. My neuropathy is steadily worsening again. After a vacation in Florida to visit my parents, they convinced me that a possible cause of my symptoms (numb hands and feet, pain in feet and legs, constantly being cold, dizziness, fatigue, constipation, insomnia, irritability, etc.) could be the result of an eating disorder.

You see, I lost a lot of weight in college after being overweight for a few years. The healthy diet turned into being overly obsessive about being "fat" again. So, for about the past 25 years I have been on a continual restrictive diet and exercise rigorously. In the last few years, I have kept it in the low 90s and high 80s. I am 5'2" and usually weigh between 87 and 92 pounds. For years now people have commented on how excessively thin I am, although some tell me how great I am looking these days which makes me want to lose/maintain despite the concern of those closest to me.

Have any of you ever been diagnosed with some kind of nutritional neuropathy? Keep in mind my blood work has always come back with higher than normal vitamin levels. And there is no evidence of stress on kidneys or liver.

I decided to "self treat" for anorexia and rapidly increased my calories this past week with the goal of gaining 10 lbs and seeing if that helps. I have to tell you so far I feel WORSE. I am so tired and bloated and in pain. Hoping someone out there has had a similar experience before I venture out into the world of eating disorder forums.

Please help!
My nueropathy showed up this last summer when I decided to live healthier. I started eating better, quit eating sugar and stated excersizing like crazy. I was the healthiest I had ever been, so I thought. Then bam I got hit with it and now I am in the worst shape of my life gaining weight like crazy but still eating healthy and unable to excersize. I was able to run 10 miles without stopping and now I can barely make it from one seat ot the next.If eating more is making you feel worse then don't do it.
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Old 03-20-2014, 10:36 PM #3
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My nueropathy showed up this last summer when I decided to live healthier. I started eating better, quit eating sugar and stated excersizing like crazy. I was the healthiest I had ever been, so I thought. Then bam I got hit with it and now I am in the worst shape of my life gaining weight like crazy but still eating healthy and unable to excersize. I was able to run 10 miles without stopping and now I can barely make it from one seat ot the next.If eating more is making you feel worse then don't do it.
Do you know what caused yours??
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Old 03-21-2014, 06:58 AM #4
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Default You haven't has a period--

--in 21 years at the age of 40?

Has that ever been looked into? There are many causes for this, but being very underweight is certainly a leading candidate--and that would mean a lot of hormonal abnormalities that could lead to many kinds of symptoms . . .
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Old 03-21-2014, 07:38 AM #5
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Some thoughts...

1) what have added to your diet now that you have not been eating regularly? It may take time for your digestion to adjust to the new and increased amount of food.

2) Have you considered that you may have a gut issue? Possible yeast overgrowth and that maybe you need to add in a good probiotic and limit sugars at first. The bloating and constipation are a strong indicator of a gut imbalance.

3) Calorie counting can be very misleading in that not all calories are created equal. You really have to look for nutrient rich food when trying to modify your weight.

4) What vitamin levels are coming back higher than normal? And are you taking supplements?
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Old 03-21-2014, 07:43 PM #6
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Some thoughts...

1) what have added to your diet now that you have not been eating regularly? It may take time for your digestion to adjust to the new and increased amount of food.

I have added complex carbs which have been completely avoided for 15/20 years now-things like sweet potatoes and brown rice. Plus my usual dinner was always a big salad and I have been having small salads with some protein and a carb. This is very different from my past habit. I never eat lunch and have been having small meals at midday for the first time-gluten free crackers (also new) and cheese, hummus and carrots, hard boiled eggs. So this variety of foods is all very new to my system. I do not have an appetite at all and have been forcing myself to eat regularly-but I wonder if this is also what is making me more sick???? Which leads me to your next question...

2) Have you considered that you may have a gut issue? Possible yeast overgrowth and that maybe you need to add in a good probiotic and limit sugars at first. The bloating and constipation are a strong indicator of a gut imbalance.
I had a long bout with giardia about two years ago and along with my eating issues, this very well may have caused damage to my digestive system. Sometimes I wonder if the nutrients are even being absorbed. I do take a strong probiotic every morning. It is RAW brand and at 2 pills contains 100 billion of 38 different strains-must be refrigerated. Plus I try to eat a little bit of greek yogurt at night. I take Lizness for constipation which may be aggravating any digestive imbalances but I cannot stand being plugged up all the time!

3) Calorie counting can be very misleading in that not all calories are created equal. You really have to look for nutrient rich food when trying to modify your weight.
Any chance you could give me some tips? I do love fruit so avoiding those kinds of sugars would be very difficult. Other than greek yogurt, I avoid any kind of cow dairy products. I eat a lot of vegetables as I do not eat meat other than seafood and hard boiled eggs. For fats, I consume nuts, almond butter, avocados and goat cheeses. If I want a treat, I will have a few 70% cacao chips mixed with plain greek yogurt and berries. My breakfast is a smoothie made with fruit, plant based protein powder, almond milk and some kind of green (usually kale or spinach).

4) What vitamin levels are coming back higher than normal? And are you taking supplements?
I was taking the whole litany of supplements recommended on the Sticky Thread but stopped cold turkey on my neurologist's advice. Since I was getting worse, she thought it would be better to avoid them for now. The typical doctor's response of vitamins not being monitored by FDA and we do not know what is in them. Before I started going downhill, she had no problem with them so she is fairly open minded. The vitamin levels that came back high were B6, B12, and B1. This was while I was on supplementation. The B6 levels came down fairly quickly and was dismissed as a cause of my neuropathy since my symptoms did not improve.
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Old 03-21-2014, 08:14 AM #7
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Originally Posted by glenntaj View Post
--in 21 years at the age of 40?

Has that ever been looked into? There are many causes for this, but being very underweight is certainly a leading candidate--and that would mean a lot of hormonal abnormalities that could lead to many kinds of symptoms . . .
Yes, I have had everyone from my GP, OBGYN, Fertility Doctors, RH, Neurologist, and even alternative therapists look into the lack of menstruation. The official diagnosis is amenorrhea.

Recently, my new OBGYN pulled series of hormonal tests and my estrogen and progesterone came back unmeasurable they are so low. I considered birth control pills but decided not to add another "pill" into my body. The Tramadol and Linzess are doing enough damage for now! I am on synthroid for hypothyroidism. Now I am beginning to wonder if my thyroid stopped working because of low body weight as well...
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Old 03-21-2014, 11:16 AM #8
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Yes, pretty much all of my doctors have said at some point that I was on the thin side and could gain some weight. But nobody seemed overly concerned so I continued on my "merry" dieting way.
I've noticed in recent years that this has been a change in how doctors communicate with patients, and there have been articles and studies about it. When doctors act alarmed, disapprovingly, and/or scold patients, it tends to be off-putting, and some patients avoid their doctors out of fear of chastisement/embarrassment which can lead to un(der)treated health issues and further problems down the road. I've noticed the same change with dentists.

Mentioning/suggesting to patients is less "threatening" and often/usually results in better communication and cooperation, but some may think the doctor's casual attitude is unconcerned.

I think what that shows is that you can't win them all/danged if you do—danged if you don't, but the studies suggest that the milder approach works better for the greater number.

I'd love to cite the studies, but I admit I'm uncharacteristically winging this one from memory.

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The official diagnosis is amenorrhea.
Kinda meaningless.
Quote:
Amenorrhoea (BE), amenorrhea (AmE), or amenorrhœa, is the absence of a menstrual period in a woman of reproductive age.
....
Secondary amenorrhoea (menstruation cycles ceasing) is often caused by hormonal disturbances from the hypothalamus and the pituitary gland, from premature menopause or intrauterine scar formation.
http://en.wikipedia.org/wiki/Amenorrhoea
Which agrees with Glenntaj (cited causes notwithstanding), and what I was thinking. What's relevant is the reason for amenorrhea.

I also agree that it's not just about calories per se. Nerves—as well as muscles, bone, and other organs—must be fed the right things to stay healthy.

anorexia amenorrhoea neuropathy

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Last edited by Dr. Smith; 03-21-2014 at 07:03 PM. Reason: typo
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Old 03-21-2014, 07:05 PM #9
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--in 21 years at the age of 40?

Has that ever been looked into? There are many causes for this, but being very underweight is certainly a leading candidate--and that would mean a lot of hormonal abnormalities that could lead to many kinds of symptoms . . .
Not really-none of my doctors brought it up as a cause. I am going to ask my neurologist about it next time we meet. It did not really occur to me since no medical professional, other than my OBGYN, brought it up as a medical concern. Now I am so confused and frustrated as today has been one of the worst days of this whole saga....is it my body trying to get used to the extra food or could I be aggravating a different underlying condition?!!
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Old 04-14-2014, 03:34 PM #10
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Default Height & Weight

Maybe just for a comparison, Kelly Ripa (43) is 5'3" and weighs 110 lbs

http://www.bodymeasurements.org/kelly-ripa/

http://us.cdn281.fansshare.com/photo...1000088078.jpg
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