Hello Stacy. Sorry you are in pain like that. If you don't like your current doctor, do yourself a favor and start looking for a new one who can understand you, and whats more understands the condition you have. Without the medical field to help you, it is most difficult when pain dominates everything... A good PCP will give you the referrals you need. If you post where you live, someone on line here may be able to direct you to some doctor they know.\
Please don't give up, and keep the faith. I will be here to listen anytime. You do need a good physician. Also a physiatrist, (Not head doctor) may be another approach. Many do not know what kind of doctor this is. A physiatrist treats the whole person, not just a set of painful symptoms. Mine happens to specialize in pain. You do need referral for most neurologists, but I am not sure about the physiatrist. Take that first set and set up an appt. with a new doctor. Bring your written list of symptoms of pain etc. It also helps to have someone with you when you go. Doctors tend to listen a bit better when back up is in the room with you. Go forward, don't stop, there is relief and help out there, but you must find it. It took me several years to find the crew of physicians I now have. It was worth all the searching to have them. I will keep you in my thoughts and prayers. Keep that faith going OK? Write if you feel like it. ginnie