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Test results...sorta?

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Old 04-22-2014, 08:37 PM #1
Stacy2012 Stacy2012 is offline
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Default Test results...sorta?
I got a letter today, and it did not contain the specific results but I will ask for them, however the letter said:

Your bloodwork showed normal serum protein electrophoresis, normal sed rate, negative ANA and RF. All these mean we have not found inflammatory causes for your burning pain.

Anyone comment? I am not sure what any of this means specifically other than no inflamation, which is shocking to me.

Do these sound like normal tests to check for PN??????

It seems odd she only tested for inflamation.
Last edited by Stacy2012; 04-22-2014 at 08:59 PM.
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Old 04-22-2014, 09:03 PM #2
Jon_sparky Jon_sparky is offline
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Originally Posted by Stacy2012 View Post
I got a letter today, and it did not contain the specific results but I will ask for them, however the letter said:

Your bloodwork showed normal serum protein electrophoresis, normal sed rate, negative ANA and RF. All these mean we have not found inflammatory causes for your burning pain.

Anyone comment? I am not sure what any of this means specifically other than no inflamation, which is shocking to me.

Do these sound like normal tests to check for PN??????
I think it just means that your pain isn't caused by inflammation from RA or artheritis. They are just testing to make sure you don't have a unlying condition that is causing the burning pain. Peripheral Neuropathy is neurological in nature, I imagine they will next test for causes, such as small fiber neuropathy etc.
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Old 04-22-2014, 09:05 PM #3
Stacy2012 Stacy2012 is offline
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It seems like she should have tested for more things than just inflamation.

I mean, at this rate, making me come back every 4 weeks and only running such limited tests, I will be broke or dead of pain before she figures anything out. Not that she is ever going to.

This feels like such a waste, when in the end, it will just be...who know what, but take your pain meds and go home.
Last edited by Stacy2012; 04-22-2014 at 09:37 PM.
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Old 04-22-2014, 10:34 PM #4
Jon_sparky Jon_sparky is offline
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Originally Posted by Stacy2012 View Post
It seems like she should have tested for more things than just inflamation.

I mean, at this rate, making me come back every 4 weeks and only running such limited tests, I will be broke or dead of pain before she figures anything out. Not that she is ever going to.

This feels like such a waste, when in the end, it will just be...who know what, but take your pain meds and go home.
Is she a Rhumitologist or a Nuerologist? My Rhumitologist did the same tests, they came back normal, so she put me on anti inflamitory drugs, even after telling her I didn't have inflammation. But, I guess that is the steps they take to rule out all the possibilities. Tests for PN are even more expensive, that is why she is starting with the cheap blood work.
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hopeful (04-23-2014)
Old 04-22-2014, 11:28 PM #5
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Default Skin biopsy
Stacy,

The gold standard for SFN is the skin biopsy. It is expensive, so make sure beforehand that your insurance will cover it. It takes two weeks for the result.

I had one in 2013 that I was certain would come back abnormal due to my sensory symptoms. Alas, it did come back abnormal, demonstrating decreased nerve fiber density in the skin.

If you suspect SFN, this is the test that I would be seeking if I were you.

I sincerely wish you the best in your journey.

Jason
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Old 04-23-2014, 06:26 AM #6
glenntaj glenntaj is offline
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Default And--
--though a serum protein electrophoresis was done, this may not be specific enough to check for monoclonal antibodies, or M-proteins, which are rogue antibodies that cross react with some nerve epitopes and are known to cause neuropathies:

http://neuromuscular.wustl.edu/antibody/mprotein.htm

To detect these one should have the more focused immunofixation electrophoresis of serum and urine done, along with an immunoglobulin enumeration (to see how much IgG, IgA, and IgM you have--this is usually done along with an immunofixation).
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