I went for a second opinion to a neurologist. Anyhow some know I was on a cymbalta,lyrica,and a higher dose of neurontin which was 300 and then went to twice a day. All gave me horrible side effects like dizzy,what I call out of body,jittery. So then we tried elavil which does nothing. When I went to the other neuro she wants to try neurontin again but start at 100 and the 100 twice a day since so sensitive. I'm scared as I hate that feeling and also I'm in so much pain still basically in bed after more then 3 months so will it even help. Also she was talking about a steroid shot which I said I would wait for since I had two shots in my inner ankle already which may have been different but made me way worse. I'm going to call my other neuro about the shot but any feed back?My pain is mostly in left inner ankle/foot/calf but also sometimes in right.The left is unfunctionable though. All my tests which have been everything and now am sending all info to Chicago and Mayo has said inflammation and the ssep and nc did show pn so the neuro said now to tweak meds but it seems like my pain is so much worse as still in bed most days but now in a shoe no more boot. So I still feel the every test imaginable is not showing.I have an apt with a pain clinic that I keep putting off but they seem to only do things like epederal etc.Thanks for any feedback.

Daniella,
Do you have the written report of your test that the neuro did? Can you post what the report actually says? And I'm sorry, but I've been out and did not see your original post giving your history. Can you direct me to it?

Billye

I couldn't take Neurotin either, it made me feel awful, what really helped me was Tramadol Slow Release [no groggy feeling], 300mg x 2 per day, i think the max is suppose to be 400 mg per day but the extra 100mg at that time did really help.
Have you tried " the rebuilder or a TENS machine ? i have read good reports from them over time.

Brian

Brian,
Wish my docs would up my Tramadol to 600.
Maybe then my 2-3 would go to -0-.
But 400 is the max around here.
You mates 'down under' must have more flexible docs.
Lucky blokes!

Daniella, have you tried the Fentanyl patch?

Yeah Bob, it probably would make a difference, i know it did for me, at that time i was on Tr - 200 SL just wasn't enough, but after the extra 100 mg tab it really helped it get down to a comfortable level.
I don't know if all doc's here would perscribe the extra, but i convinced my GP that 200 mg was not enough and i wasn't prepared to take any others like Neurotin, Oxycontin etc, so i suppose it left him in a position that he had know else to turn, my neuro thought it was ok as well to take that amount , so i guess we are lucky or just may be just lucky enough to have 2 doctors that were not scared to perscribe higher than normal recommended doses.
May take some convincing to your doc's that you need the extra to make your pain bearable, at least, rules are made to be broken
good luck,
Brian

Ah ha! So maybe you can help me with a question as well. I posted in Jack's thread as well as he also mentioned Tramadol. I have some here my surgeon gave me after my CT surgery. For me it didn't play well with the Gabapentin which I no longer take. I'd rather be in pain than suicidal. The B-vitamins are helping as the pain is much less severe than it ever was. I had about 6 weeks of little or no pain. Now I seem to be in a plateau where the pain is back, though nowhere near as bad as previously. The worst part is that this pain only comes on at night and interferes with my sleep. The other night I don't think I slept at all. It was that annoying. At any rate, does Tramadol work immediately? In other words, on a bad night could I take a Tramadol and expect it to give me at least enough relief to get to sleep?

Are the ones you have "slow release" or the ones that last [i think,not sure ] 4 hours ? with the Slow release, taking every 12 hours there are no laps in times where the pain increases, i am not sure about the others though, asking Bob would be the shot, though.
Brian

I have the regular 4 hour tabs. I tried taking one last night. I was picked for jury duty yesterday and spent most of the day from 8:30 to 5:00 sitting. My feet were bothering me before I went to bed so I took a Tramadol and it *worked*! I was able to fall asleep no problem. Thank goodness! It's not every night that my feet bother me now but I had a night earlier in the week where I don't think I slept at all. It seems once I'm actually asleep they no longer bother me and they're always fine when I get up in the morning.

Hi and thank you. I am on tramdol but as needed as a sub for vicadin unless in horrible pain. I don't have the report back yet just the doc told me and the written will be ready next week. I'm trying to get all my records to send to chicago and mayo. I talked to my neuro yesterday and the shots were the ones we tried which made me worse. I'm going to try again the very low dose of neurontin and if not increase Elavil. I think in the start I tried the patches. I'm very fearful of everything tests and meds because my syptoms always get worse. I'm still confused on the b supplement. I have high b12 still on last weeks tests at 1500. I want to try the b12 pill though as everyone here said no harm but also was taking b complex but not consistent. Sorry I'm not much help to all of you but thank you for your suuport. I don't know if any of you have tried sleep meds seperate from what your taking. I'm trying to stay away from as many pills as possible since I have weird reactions but sometimes aside from pain the anxiety of possible pain keeps me up.