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05-31-2007, 03:00 PM
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Hi Liza,
That bit about the small movements causing extreme pain is right on target. There have been many times that I lie in bed afraid Michael is going to move, because I just KNOW it's "one of those nights", and the minute he shifts I am gonna be in trouble. We have a second bedroom, but I just hate having to be apart from him... rsd/crps sucks! But those jerks and pains are different than rsd pain. They involve the muscles, spasming and contracting. (Side effect of rsd, we aren't as active as we should be, end up with atrophy etc.) The jerks then set off rsd pain in the nerves, sometimes... but not always. RSD pain mainly comes from "outside sources". Your clothes rubbing against you, someone unexpectedly touching you, even the danged WIND can set it off.  I reread every post in this thread, and cannot find this "HLA" thing of which you speak. But that's probably all these meds, dangnabbit!  I'll read it if you put up a link to it, lol.
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