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Old 06-01-2014, 10:37 AM #1
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In the case of CMT, a person knows when they can no longer do the job or many other jobs. And a neurologist who knows CMT can confirm that you no longer can do the job.
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Old 06-01-2014, 12:05 PM #2
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Are you asking about SSDI and if that might apply, or just stopping working in general.

We have a Disability forum that can help get you started in that process and with info on what is needed to qualify if that is a concern.
http://neurotalk.psychcentral.com/forum28.html
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Old 06-07-2014, 01:35 AM #3
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Quote:
Originally Posted by Jo*mar View Post
Are you asking about SSDI and if that might apply, or just stopping working in general.

We have a Disability forum that can help get you started in that process and with info on what is needed to qualify if that is a concern.
http://neurotalk.psychcentral.com/forum28.html
Thank you for the information
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Old 06-07-2014, 01:44 PM #4
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How long have you had PN does it ever get less painful. Have any of your nerves deteriorated and if so is it still so painful.

I am hoping with time this monster will eventually give up and leave me alone.

i have had pn now for almost 13 years. the pain has defiitely lessened as the numbness has increased. i still get shocking, squeezing, stabbing and burnng pain sporadically but it is much less and the throbbing pain in gone. my main pain problem now is the broken bones type pain i get on standing or walkng which has greatly limited me. i get tired easily, and my limbs start to feel like lead after short periods of activity. balance is a big problem. the pn is still progressing in severity slowly for me.
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Old 06-08-2014, 10:00 PM #5
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i have had pn now for almost 13 years. the pain has defiitely lessened as the numbness has increased. i still get shocking, squeezing, stabbing and burnng pain sporadically but it is much less and the throbbing pain in gone. my main pain problem now is the broken bones type pain i get on standing or walkng which has greatly limited me. i get tired easily, and my limbs start to feel like lead after short periods of activity. balance is a big problem. the pn is still progressing in severity slowly for me.
Hi,
Do you take Lyrica or Gabapentin or on a Viatmin regime. Did you ever go to Physical Therapy and take long walks to build up strength and endurance.

Thirteen years is a long time to have this monster condition. I noticed in the 8 months I have had it at times it's fine and plenty of times it's not especially at night. During the day when I am active it's is ok most of the time at the day wears on I start feeling the burning and numbness more and the hurt and my legs ache not everyday but throughout the week.

That is great it's is on a slow boat I hope I am that way too with the progression. I noticed lately my ankles feel numb maybe it's crawling up. However I was diagnosed with sensory polyneuropathy from feet to knee.

Thanks for sharing.
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Old 06-08-2014, 10:58 PM #6
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i dont take lyrica or gabapentin. tried them both but the side effects were too much. I am taking a few vitamins, among them, fish oil, r lipoic acid, benfotiamine, b complex, b12, acetyl l carnitine, and d3.
i used to take long walks of an hour or more with the dog mostly, but i just cant do it anymore. its not a matter of conditioning for me, my legs and arms just get very tired and heavy very fast. as an example today the chain broke on a ceiling fan. i had to put a new one on but could only keep my arms up for about 30 seconds at a time before i had to put them down again to rest. i did try physical therapy but it didnt help. the more i do in a day the worse the pain is.
no one knows how their pn will progress or if it will progress. it could stay the same or even improve. hopefully yours is one that stays the same or progresses very slowly.
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