Hi,
Do you take Lyrica or Gabapentin or on a Viatmin regime. Did you ever go to Physical Therapy and take long walks to build up strength and endurance.

Thirteen years is a long time to have this monster condition. I noticed in the 8 months I have had it at times it's fine and plenty of times it's not especially at night. During the day when I am active it's is ok most of the time at the day wears on I start feeling the burning and numbness more and the hurt and my legs ache not everyday but throughout the week.

That is great it's is on a slow boat I hope I am that way too with the progression. I noticed lately my ankles feel numb maybe it's crawling up. However I was diagnosed with sensory polyneuropathy from feet to knee.

Thanks for sharing.
uglogirl aka Gloria

i dont take lyrica or gabapentin. tried them both but the side effects were too much. I am taking a few vitamins, among them, fish oil, r lipoic acid, benfotiamine, b complex, b12, acetyl l carnitine, and d3.
i used to take long walks of an hour or more with the dog mostly, but i just cant do it anymore. its not a matter of conditioning for me, my legs and arms just get very tired and heavy very fast. as an example today the chain broke on a ceiling fan. i had to put a new one on but could only keep my arms up for about 30 seconds at a time before i had to put them down again to rest. i did try physical therapy but it didnt help. the more i do in a day the worse the pain is.
no one knows how their pn will progress or if it will progress. it could stay the same or even improve. hopefully yours is one that stays the same or progresses very slowly.