I would be interested in hearing from people who stopped working because of their neuropathy. How did you know that you just couldn't continue to work? Thanks to all.

In the case of CMT, a person knows when they can no longer do the job or many other jobs. And a neurologist who knows CMT can confirm that you no longer can do the job.

Are you asking about SSDI and if that might apply, or just stopping working in general.

We have a Disability forum that can help get you started in that process and with info on what is needed to qualify if that is a concern.
http://neurotalk.psychcentral.com/forum28.html

I have Neuropathy since October and it is extremely painful. I am in my
60s and stopped working in the Public Sector 5 years ago. I work at home as a customer service representative and that is hard enough without thoughts of working outside the home.

I can wear comfy clothes and don't need to put shoes on my feet. I would not be able to do it.

My feet when they are burning and acting up I can put on bengay and put them up to relax.

Kudos to anyone who has Neuropathy and works outside of the home.

Like the person above said you will know when you can't work anymore

I think you would know it is too much of a struggle and would feel hopeless.

Shopping to me some days is too much not alone going to work everyday.

Good Luck.
uglogirl

I have been struggling with trying to work even though my pain is so bad I often end up crying in the bathroom while at work. I feel like my job is killing me but I can't afford to not work. It's a hard choice to have to make.

it was made for me. a doctor at my job walked into the room looked at the chart, looked at me and said your career is over and walked out. i have more than pn but for me the pn has been the most limiting and life changing 24/7.

It was so hard to finally make that decision. I've had SFN for 6 years now. I managed to work for 4 of them. I put so much education etc. into getting my job it killed me to give it up.

I knew it was time when I would be up in pain until 3am and had to be in work at seven. I use to sit on the edge of my bed and cry about my pain before I left the house. I got to the point where my focus was more on my pain then my work. Not fair to others.

That being said, I still miss it. If you are considering it you are probably getting to that point.
Good luck!

It must have been so hard for you to give your career up, you stuck in there for 4 yrs Kudos.

I am lucky I work at home and can go barefoot all day since it hurts a lot more with shoes on my feet.

I am 68 yrs old and not ready to quit working, but I know if I was in the public sector I would definitely retire.

How long have you had PN does it ever get less painful. Have any of your nerves deteriorated and if so is it still so painful.

I am hoping with time this monster will eventually give up and leave me alone.

Thank you for the information