[Angiep]

Hello all, Im new here and my name is Angie. My other half was diagnosed with Neurosarcoidosis last year although the diagnosis was pretty difficult as he didnt have all of the classic symptoms and they came to that as the nearest diagnosis via an ankle nerve biopsy. He has vasculitis and severe peripheral neuropathy with no feeling at all all down his right side. He has recently finished a course of intravenous chemotherapy (cyclophosphamide) which doesnt seem to have helped and we are desperate to find something that will help him and speak to anyone else in the same position. He is currently on gabapentin and other tablets but he has now got to the point where he feels he is never going to get better. Please can anybody help in any way?

[Kitt]

Welcome Angiep.

Someone will be along to help.

[Breia Lee]

Hi Angie,

I'm sorry to hear that your other half is suffering so much and feeling so helpless. I think most of us truly empathize with you both, as there never seem to be any quick or easy answers for restoring health, or even relieving pain, unfortunately.

I have peripheral neuropathy, too, but nowhere near as painful as what you are describing that he experiences. Do you mind if I ask what other medications/supplements he is taking, and at what doses? This information might help us get a better idea of what suggestions we might be able to make to try to help you all.

And welcome! I am new here too, but I'm a long time sufferer who came here seeking my own answers. I hope I can help in some way.

Bren