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Old 06-17-2014, 10:44 PM #1
Angiep Angiep is offline
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Join Date: Jun 2014
Posts: 4
10 yr Member
Angiep Angiep is offline
New Member
 
Join Date: Jun 2014
Posts: 4
10 yr Member
Default Desperate plea for some help!

Hello all, Im new here and my name is Angie. My other half was diagnosed with Neurosarcoidosis last year although the diagnosis was pretty difficult as he didnt have all of the classic symptoms and they came to that as the nearest diagnosis via an ankle nerve biopsy. He has vasculitis and severe peripheral neuropathy with no feeling at all all down his right side. He has recently finished a course of intravenous chemotherapy (cyclophosphamide) which doesnt seem to have helped and we are desperate to find something that will help him and speak to anyone else in the same position. He is currently on gabapentin and other tablets but he has now got to the point where he feels he is never going to get better. Please can anybody help in any way?
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