Updating my SFN...it's been awhile :)

beatle · 06-17-2014, 11:27 AM

Hi Debi,
If you haven't heard of The Rebuilder, it's a TENS unit for the nerves that seems to provide some benefit. Two problems: they are expensive (about $800) and I believe the company has been reprimanded by the FDA for making false claims as a cure for neuropathy which likely deters people from trying it. My experience however is that it does help. I just used mine last night.

ger715 · 06-18-2014, 11:13 AM

I purchased a REBUILDER a few years ago. It did nothing for my PN. Had been posting at that time on a different site and mentioned if someone wanted to pay for the shipping, they could have the Rebuilder "free" of charge. I did get someone from Canada that did take advantage of my offer. I had asked him to let me know if and how it worked for him; but never heard from him again.

As we all know, many things work differently for all of us; this just took up space for me.

Gerry

marty75 · 06-18-2014, 02:23 PM

Quote:

Originally Posted by beatle

Hi Debi,
If you haven't heard of The Rebuilder, it's a TENS unit for the nerves that seems to provide some benefit. Two problems: they are expensive (about $800) and I believe the company has been reprimanded by the FDA for making false claims as a cure for neuropathy which likely deters people from trying it. My experience however is that it does help. I just used mine last night.

I also have the Rebuilder (in Canada, back in 2007 I paid $500). For what it's worth - after using it for about 6 months, the burning in my feet had completely disappeared. However, it was/is not able to stop the debilitating 'pressure' pain from walking.

uglogirl · 07-03-2014, 06:30 PM

Quote:

Originally Posted by marty75

I also have the Rebuilder (in Canada, back in 2007 I paid $500). For what it's worth - after using it for about 6 months, the burning in my feet had completely disappeared. However, it was/is not able to stop the debilitating 'pressure' pain from walking.

Hi Deb,

September is a while off to be in the kind of pain that you describe. I went to pain management and have the compound cream.

The compound crème is like a miracle. Today I hardly felt any Neuropathy symptom.

If you can make your pain management appointment and get the cream I highly recommend it.

Uglogirl aka Gloria

St George 2013 · 07-10-2014, 10:36 PM

Quote:

Originally Posted by uglogirl

Hi Deb,

September is a while off to be in the kind of pain that you describe. I went to pain management and have the compound cream.

The compound crème is like a miracle. Today I hardly felt any Neuropathy symptom.

If you can make your pain management appointment and get the cream I highly recommend it.

Uglogirl aka Gloria

I remember you saying you were getting some cream.....what's in it ?

I'm really putting a lot of faith in Emory....hope I'm not disappointed. I do know they have a pain mgmt. clinic and I'm guessing the neuro will refer me to them but I don't really know. Hopefully they will check me head to toe and ck all my blood work first.

I guess I'm in the mindset that nothing is really going to help get 'rid' of the pain since my dr's just shake their heads when they see my biopsy. Just about talked myself out of a SCS if they suggest one.

Thanks and I'll talk to you soon my friend

Debi from Georgia

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