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Old 06-23-2014, 10:36 AM #1
Allwrightann Allwrightann is offline
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Default Anyone use pain pump?

Hi again. I am very much in need of information regarding what medications were found to be effective. The oral Meds have not worked for me or have given terrible side effects. Thanks so very much.
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Non traumatic crps, full body PN, MCTD, Raynauds, lyme+bartonella chronic. No gluten, grains, sugar, very low carbs.
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Old 06-23-2014, 11:03 AM #2
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Default Anyone use pain pump?

Hi again. I am very much in need of information regarding what medications were found to be effective in pain pumps for neuropathy. The oral Meds have not worked for me or have given terrible side effects. Thanks so very much.
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Non traumatic crps, full body PN, MCTD, Raynauds, lyme+bartonella chronic. No gluten, grains, sugar, very low carbs.
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Old 06-23-2014, 11:23 AM #3
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Have you used the forum wide search tool for pain pump, prialt, etc?
http://neurotalk.psychcentral.com/search.php

It might be the quickest way to find specific posts on those topics.
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Old 06-23-2014, 01:09 PM #4
Allwrightann Allwrightann is offline
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Yes I have some were pretty dated so I was hoping for new info. Any tips really. Kinda desperate the pain is so bad. Thank you for your help
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Non traumatic crps, full body PN, MCTD, Raynauds, lyme+bartonella chronic. No gluten, grains, sugar, very low carbs.
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Old 06-25-2014, 07:11 PM #5
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I haven't used a pain pump, but I don't have peripheral neuropathy to the extent you do. I read your post on the lyme forum and listed there some of the meds that worked for me. Which meds have you tried, other than Lyrica?
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Old 06-25-2014, 08:17 PM #6
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Default Drugs tried other ideas?

I've tried everything I think. Lyrica neurontin oxcarbazepin and all the other anticonvulsants excepting topamax because I still take some neurontin and oxcarb help me fall and stay asleep for the most part. Along with Zolpidem and melatonin. I even tried pain killers all the way up to morphine 15 mg 4 hrs apart 2x/day but didn't even touch the pain. We were hoping it wasn't neuropathic pain just some insane burning from lyme or Bart or maybe crps if tha diagnosis is for real. I'm a rare case with no traumatic injury but it's what the neuro said when I questioned crps. Anyone have any other ideas? I welcome them all. Anyone been out to Mayo for neuropathy? Neuro trying to get me in there
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Old 06-26-2014, 12:16 PM #7
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My aunt actually went to the Mayo clinic for treatment of her pain. I don't know what her actual diagnosis was, but she had severe back pain extending down into her leg, with no known cause. From what I understand, the treatment was unusual but effective-the pain dissolved and never returned. I wish I knew more of the details, but my aunt has brain cancer now and this information is all from her daughter. Maybe someone else has another experience with the Mayo Clinic they can share...all I know is that it did work for my aunt.
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Old 06-26-2014, 09:02 PM #8
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Thank U so much for ALL your information. My heart goes. Out to your aunt.
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"Thanks for this!" says:
Breia Lee (06-26-2014)
Old 06-26-2014, 09:07 PM #9
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You're welcome. And thank you for thinking of my aunt. For all of the suffering we endure, there are always loved ones who endure much more...that thought always put things in perspective for me.
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