No strength in toes

Kitt · 06-29-2014, 09:53 AM

Welcome Geneo76.

What did the doctor mean when he said that the core of your nerves are bad? Just curious.

Susanne C. · 06-29-2014, 12:15 PM

I was wondering that too, did he mean the axons? I have axonal hereditary neuropathy (CMT type 2). I am also unable to move my toes or much of my foot , although the numbness preceded the weakness by many years. Does anyone in your family have neuropathy symptoms?

Geneo76 · 06-29-2014, 07:05 PM

Thanks for the replies. I did take Dilantin for many years. I know some meds are hard on the kidneys. I haven't had a blood test on them in a couple years. I will look into having levels checked for Vitamin D.
As far as my "core" being bad. He compared it to an electrical wire. He said the outside sheathing was fine, but the inside wire, ( maybe he didn't say core), was the problem that I had.
I see some folks suggest taking Omega-3 for the nerves. I'll start with this. It can't hurt

Gene

mrsD · 06-29-2014, 07:22 PM

Omega-3s are very helpful, but mostly for myelin sheathing.

For the cells themselves, you might consider some acetyl carnitine. This will improve the energy production inside the cell by the mitohondria. It is the main supplement for cellular functioning inside the cell. 1 to 2 grams a day in divided doses is the usual dosing. Start at 500mg a day and work up to 2 grams a day after a couple of weeks.

Kitt · 06-29-2014, 07:55 PM

Quote:

Originally Posted by Geneo76

Thanks for the replies. I did take Dilantin for many years. I know some meds are hard on the kidneys. I haven't had a blood test on them in a couple years. I will look into having levels checked for Vitamin D.
As far as my "core" being bad. He compared it to an electrical wire. He said the outside sheathing was fine, but the inside wire, ( maybe he didn't say core), was the problem that I had.
I see some folks suggest taking Omega-3 for the nerves. I'll start with this. It can't hurt

Gene

Sounds like the axon. Dilantin has an uncertain or minor risk for a CMTer.

Geneo76 · 06-30-2014, 09:53 PM

I don't have anyone else in the family with a history of neuropathy. My toes don't have "pain" like some people do. Just a slight burning or numbness where the toes meet the foot. I really only notice this after I kick my shoes off in the evening. But the walking is more flatfooted than anything. It is very frustrating, to say the least. With all the information gleaned here, maybe I can find a resolution to this problem.
Thanks,
Gene

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