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Old 07-30-2014, 11:21 PM #1
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I have a low dose (100 mg capsules) on hand, and I might use them if I hadn't had such good luck/results with R-Lipoic Acid and B5. If you've tried all the supplements to no avail, it may be worth trying. I also feel doctors tend to prescribe it (initially) at too high a dose (on the recommendations of BIG PHARMA).

Be aware that it may address some types of PN pain, but not others, and only helps about 30% of patients who try it. It will do nothing for the numbness.

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Old 07-31-2014, 09:20 PM #2
Virginia Therese Virginia Therese is offline
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Default Gabapentin or not

Thanks to all of you who responded to my request related to Gabapentin. I have always been extremely reluctant to take ANY medication...and this one is no exception...and, in fact, I actually am fearful about taking it. From what I was able to determine from your responses, it's a question of getting some relief with the possible issue of uncertain and unpleasant side effects...something that I'll have to wrestle with. Susanne C...if symptoms seem to be just a nuisance, I may want to put Gaba off for a while. I discussed this with my new internist this past Tuesday, and she more or less agreed w/this...even suggested that I start w/Tramadol for pain (but, to be very careful about constipation). I was given Tramadol when I was in the hospital in January for a broken hip so that wouldn't be new to me and I just might feel more comfortable using something more familiar to me than the Gaba. Groucho...you mentioned Tramadol, too. How does that "work"for you? You also mentioned "decent days"...that's exactly how I would describe my days at this point, Groucho...so thankful for "decent days"...just wondering if I should consider these to be just "nuisance days"...but, then, when I do have the burning, pain and stiffness, I probably should consider trying the Gaba. Maybe I'll just start using the Tramadol to start. As you can see, I have a dilemma. Dac122 and Mike K. switched to Gralise...had been taking Gaba...how would you compare it to Gaba? Effectiveness? Side effects?

Again, thank you to all...Susanne C, Markneil 1212, Groucho, Debi, Dac 122, Mike K, Cholecasey and IllPn (hope I didn't omit anyone)...I appreciate the input from all of you...now, I just have to decide what I should do. If the pain and burning becomes intolerable, I guess I will just have to opt to try the Gaba. I have been suffering with this for 2 years...had an internist who did nothing to pursue it...told me it was arthritis...and, when I asked if it could be Neuropathy, his response was: "Yes..it could be, but there's nothing you can do about that." I should have moved on to another internist at that time. I just hope this hasn't gotten such a "hold"on me that there will be very little that can be done for me. I have read that if/when this is "caught"early, the chances for getting relief are better. Hopefully, I will still be able to get some relief. I also hope that all of you will get the relief you need.

Thank you...Virginia Therese
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Old 08-16-2014, 10:45 AM #3
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Quote:
Originally Posted by dac122 View Post
You will find many folks here on Gabapentin. It is the go-to drug for Neurologists. I was on 1800mg/day but found the constipation intolerable. I switched to Gralise, an extended daily release.

If your pain is at the nuisance level, you may only need a small amount, such as 100mg/day. At that level the side-effects are minimal, but increase as you increase dose. You will likely be started on that dose anyway.

Most folks find they need to increase the dose as the effects stop working. Eventually they find a plateau that works. Empirical evidence is most folks here plateau at 1800mg. I think there is a study measuring and concluding that.
Do you still have constipation with Gralise? I am thinking of switching to it, but I had the same issue you did with Gabapentin...
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Old 08-16-2014, 12:58 PM #4
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Welcome JessRod.
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Old 09-11-2014, 11:31 AM #5
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Default Gaba experience

Hi Virginia, I started @ 300mg/d and did not feel any different, went to 900mg/d and still feel no different. I may have increased my appetite some and am starting to,maybe be a little more forgetful, but the pains are still controlled mostly with Hydrocodone-10-325. Good luck as it seems you can get a different story from everybody. Ken in Texas
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