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Old 08-08-2014, 02:20 PM #1
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Hello en bloc,

I wonder if they will take it away as well? If the doctor does not dink with the diagnosis, it should fly. He said that he has other patients that Aetna is giving problems and it is only a matter of time for me. I know the IVIg helps my symptoms and I do better when on it, of couse I do not what happens when I am off of it at this point. But, it appears that it has not really helped the neuropathy that much. I believe that it would take a alot longer than 9 months for the IVIg to do anything with the neuropathy. If re-myelination is occuring and nerves are re-growing, this would be a slow process.

Do you have noticeable symptom reduction related to neuropathic pain due to IVIg?

Thanks,
N1

The last year I was getting the IVIG primarily for the immune deficiency. We just now started ramping up the dose for neuropathy, so too soon to tell about it helping. It will take me (due to past reactions to IVIG) about 6 months to get up to proper neuropathy...they want to proceed slowly.
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Old 08-12-2014, 09:45 PM #2
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Hello en bloc,

What would you say is a dose of IVIg that will help with Neuropathy for a 170lb male?

Thanks
N1


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The last year I was getting the IVIG primarily for the immune deficiency. We just now started ramping up the dose for neuropathy, so too soon to tell about it helping. It will take me (due to past reactions to IVIG) about 6 months to get up to proper neuropathy...they want to proceed slowly.
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Old 08-12-2014, 10:54 PM #3
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Hello en bloc,

What would you say is a dose of IVIg that will help with Neuropathy for a 170lb male?

Thanks
N1
The dosing for neuropathy is 2gm/kg. So 170 lbs is approx 80 kg, so your dose should be in the neighborhood of 160 grams (this is usually split over 2-5 days).
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Old 08-14-2014, 02:17 PM #4
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hello en bloc,

I believe this is correct, I receive 80 grams per day over 2 days.
I will double check...

Thanks,
N1


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The dosing for neuropathy is 2gm/kg. So 170 lbs is approx 80 kg, so your dose should be in the neighborhood of 160 grams (this is usually split over 2-5 days).
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