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Old 08-27-2014, 02:19 PM #1
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Quote:
Originally Posted by Sallysblooms View Post
Yes, damage to the mitochondria. That is why I always write about that, so important for the mitochondria to be supported for the nerves.
Thanks I think I am still in shock. I went for a sinus infection and ended up with something much worse!
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Old 08-27-2014, 08:26 PM #2
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Hopeful,

It will take time for this to sink in.

It appears you may have your 'answer' that you have search for so long. No, it's not a good answer, but it's still an answer. You will go through several stages of shock, anger, hurt, fear, etc.

There may not be anything to reverse the damage, but that doesn't mean you can't find a treatment to help ease your pain and discomfort. YOu may even find something to help repair the damage...you never know!! Everyone is different and therefore treatment vary for each person and what works for them. You WILL find something to help you, this I am sure.

The most important thing is to focus on what you have, not what you've lost. You will improvise, adapt, and overcome. You can focus your searches on relieving your symptoms and improving your quality of life. There is lots of good info on this board about various supplements and treatments. There will likely not be ONE thing that is your magic potion, but more likely a combination of various things to help.

I hope you keep us posted on how you're feeling and what you found helpful...so others in the same situation can learn from you.
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"Thanks for this!" says:
Dr. Smith (08-27-2014), glenntaj (08-28-2014), hopeful (08-28-2014), mrsD (08-27-2014)
Old 08-28-2014, 07:09 AM #3
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Hopeful,

John's PN was most likely caused by the antibiotics he was on back in 2002. I'm sure there were other contributing factors too. We were told if it didn't clear in 12 months, then it probably wouldn't. Then we were told by another doc 18 months. Well none of that held true. He continued to have healing well beyond that. We did a lot of things to help heal the nerves and his body. In the beginning his pain level was at a 9 or 10. Now, if he had to rate it, he would probably say it's a 1 to 1.5. So don't give up. Focus on improving your overall health and look at the nutrients like R-lipoic acid and acetyl-l-carnitine as well as the the b vitamins. Anything that supports your mitochondria would be helpful too.

Early on, he got a lot of relief using the Rebuilder. His feet will still swell and burn when it's hot out. And they are sensitive to touch. But he does not have the constant pain anymore. Much of the numbness resolved too. In the beginning, he had no reflexes when the doc tapped under the knee. That resolved too.
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Old 08-28-2014, 08:58 AM #4
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Thanks for all of your answers. I do see a psychologist that works with pain patients. I saw her yesterday. She said I'm sad because I'm grieving. I don't know why but I have held on to hope for 6 years that this would one day be cured and I could get my old life back. I know it's silly that I didn't want to face the truth. Hey, I believe in miracles!

Now I need to face that SFN is probably here to stay. It's ok I will come around.

In answer to some of your suggestions about the supplements, I do take several of them. Just started b12 again, taking r lipoid acid, krill oil, and coq10.

My pain level varies from day to day. My muscle weakness in pretty bad according to my neuro. I have started walking everyday to build strength. Funny, I don't have much trouble walking on flat ground.

We'll thanks for listening!
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Old 08-28-2014, 09:07 AM #5
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In case you're interested, John takes this formula for mitochondria support. He found it really helped his stamina and strength. Before, he could not sweep the front sidewalk without stopping multiple time to rest. He noticed gradually, that his stamina improved with this. He can now sweep the sidewalk without stopping.

Something to consider.

http://www.lef.org/Vitamins-Suppleme...FeRj7AodmUkAzQ

Last edited by Marlene; 08-28-2014 at 09:07 AM. Reason: add link
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Old 08-28-2014, 12:14 PM #6
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Quote:
Originally Posted by Marlene View Post
In case you're interested, John takes this formula for mitochondria support. He found it really helped his stamina and strength. Before, he could not sweep the front sidewalk without stopping multiple time to rest. He noticed gradually, that his stamina improved with this. He can now sweep the sidewalk without stopping.

Something to consider.

http://www.lef.org/Vitamins-Suppleme...FeRj7AodmUkAzQ
Hi Marlene,
Thanks for this information. I'm going to hang on to it. As you know I just started the bio identicals. I want to give them time to see if they help me before I start anything new. I don't want to confuse what is working.
Thanks again!!
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