I get shivering rarely but in my case it
Is due to a GI spasm, not really cold.

It is similar to cold shivers only feels
" deeper".

I call mine "rigors". If you Google this
You will find that rigors are more serious
Than shivers. I use mine as a sign to
Take my emergency med for GI spasms before
They become ultra serious and require hospitalization
As happened to me long ago.

I have had this experience many times, most recently just a few nights ago. My teeth were chattering uncontrollably and my husband had to get blankets and rub my arms and legs for a long time before it was under control. I understand what you mean about your back and stomach feeling tight. It is very stressful physically.

I have CMT, Charcot Marie Tooth, a hereditary sensory motor neuropathy and chills and ice cold extremities are part of the disease. My feet are usually freezing cold to the touch although I cannot feel them, and the colder they are it seems the more pain I have. I have to remember to keep them as warm as I can with wool socks and furry slippers. I make extensive use of electric blankets year round.

I have read your other thread and I am truly sorry that you have so much pain and disability to deal with and so little support. Neuropathy is a hard disease to diagnose and treat, often there are no treatments beyond some pain relief, and doctors are often unhelpful. Combine that with medical insurance problems and it is really overwhelming.

I went back to your first post.... I am on vacation
And on an iPhone.

I see you stated that you are on 11 rx medications?
Some major potential with them may be your problem.
A major pain in the body can start a cascade of low
Blood pressure that results in the rigors. Also misuse of
Opiates can create a mini withdrawal as the drug wears off
That results in shivering.

I would need to see that drug list to see if some interaction
Is going on. 11 rx meds is a lot to take and that
Often leads to complex situations of low blood pressure,
Electrolyte disturbances, glucose abberations, serotonin
Syndrome, etc.

If you list your meds here i can try to find a reason for
Your shivering.

If you list your meds here i can try to find a reason for
Your shivering.[/QUOTE]

Thank you so very much! Here is my list:

Gabapentin 300 mg x 3 (neurotin)
Duloxetine 60mg x 1 (cymbalta) new
Docusate sodium 100mg x 2 (colace)
HM Senna 8.6mg x 2
Abilify 2mg x1
Metoprolol 25mg x 2 (lopressor)
Amitriptyline 100mg x1 pm. (Elavil)
Ropinirole hcl 0.5 x 3 (b-requip) new for involentary twitching in feet
Alprazolin 0.5 x4 (xanax)
Zolpidem 10 mg x 1 pm (ambien)
Oxycodone 20mg x 4 (roxycodone) new increase in. Dosage

I also take a multi vitamin along with thiamine and B12. I also take the max allowed of tylenol each day

Aga in, thank you very much.

Helen

Thank you very much! Each and every waking momeent is a challenge.

Helen