there goes my potential foot model career

thank you! it is very much appreciated!

the amputation was postponed until today. it went well. keeping my fingers crossed that it doesnt set off an exacerbation of PN pain!

I was a 9/11 responder and have myositis, asthma, small nerve fiber damage, sleep Apnea, lung nodule and Carpal tunnel in both hands. It has been going on for 5 years or so and I am finally getting some diagnoses. from research I have found that many other 9/11 responders are suffering from Autoimmune disease and myositis. However I have not been able to contact or find these people. I have recently registered with the WTC Health program. I did not realize that many of my medical conditions are a direct result of WTC exposure. I am sure there are many more out there. I have recently gone out on SS Disability do to these conditions. I would like to hear from anyone who is having similar problems and how they are being treated.
John L Retired NYPD

here is an update o the thread you posted on. The same doctors did an additional study showing that the incidence of severe peripheral neuropathy in first responders is 15x higher than in diabetics. A press conference was held at Winthrop University Hospital on 1/14/16. im a first responder to the WTC also and I submitted a petition to the CDC Niosh on 1/5/16 to have peripheral neuropathy be added as a covered condition by the World Trade Center Health Program. Within about 60 more days I should receive a decision on that petition.

Right now autoimmune conditions, myositis, and peripheral neuropathy are not being treated by the World Trade Center Health Program.

They should be testing/treating you for asthma, sleep apnea, lung nodules, carpal tunnel.


This is a list of the currently covered conditions:

Aerodigestive Disorders (Airways and Digestive Disorders)
Asthma
Chronic cough syndrome
Chronic laryngitis
Chronic nasopharyngitis
Chronic respiratory disorder—fumes/vapors
Chronic rhinosinusitis
Gastroesophageal reflux disorder (GERD)
Interstitial lung diseases
Reactive airways dysfunction syndrome (RADS)
Sleep apnea exacerbated by or related to another condition described in the list of aerodigestive disorders
Upper airway hyperreactivity
WTC-exacerbated chronic obstructive pulmonary disease (COPD)

Cancer
(Note: A list of the cancers covered by the WTC Health Program and included on the List of WTC-Related Health Conditions can be found on the Covered Cancers page.)
Mental Health Conditions
Acute stress disorder
Adjustment disorder
Anxiety disorder (not otherwise specified)
Depression (not otherwise specified)
Dysthymic disorder
Generalized anxiety disorder
Major depressive disorder
Panic disorder
Posttraumatic stress disorder (PTSD)
Substance abuse

Musculoskeletal Disorders
(Limited to responders who received any treatment for a WTC-related musculoskeletal disorder on or before September 11, 2003, and meaning chronic or recurrent disorder of the musculoskeletal system caused by heavy lifting or repetitive strain on the joints or musculoskeletal system occurring during rescue or recovery efforts in the New York City disaster area in the aftermath of the September 11, 2001, terrorist attacks.)
Carpal tunnel syndrome (CTS)
Low back pain
Other musculoskeletal disorders
http://neurotalk.psychcentral.com/thread230889.html