I know this doesnt apply to or affect probably any other poster on this board unless they were at the world trade center site on or after 9/11/01 but it is important to me and several here know of my years long battle to have this recognized. .

Finally a study was conducted and the results were positive as i knew they would be if ever a study was done. A correlation is shown between world trade center dust and nerve damage. This is a personal vidication for me. Since 2004 i have been trying to get the various medical centers of excellance who monitor and treat world trade center first responders, area workers and residents as well as the National Institute of Occupational Safety and Health which now overall administers the world trade center medical monitoring program, to ask the question of participants : Do you have numbness, tingling, or nerve pain? They have so far refused even to the point of ignoring their own medical advisory board. Numerous neuro toxins have been identified in the world trade center dust. This is the cause of my peripheral neuropathy. of course more in depth studies will have to be conducted to affirm the link. but the link is there.

http://newyork.cbslocal.com/2014/09/...amage-in-rats/

MINEOLA, N.Y. (CBSNewYork) — A study on the short term effects of residual dust from the World Trade Center on rats showed some nerve damage, according to Winthrop-University Hospital Researchers.

The pilot study showed that exposure to dust from the debris of the terrorist attacks “affected the slowing of the conduction within the nerve,” said Dr. Marc Wilkenfeld, Chief of the Division of Occupational and Environmental Medicine at Winthrop-University Hospital.

Good for you.

judi

--this not only leads to more research, but more funding for treatment.

Personally, given what was in that World Trade Center dust, it's ridiculous for anyone to be denying a whole host of medical consequences in those exposed. Being nearby or downwind that day, or the days after, is likely analogous to having gone swimming in a toxic waste dump; there's no question that toxic substances were aerosolized and not only breathed in, but absorbed through skin pores as well.

Subject: 9/11 Responder Neuropathy Symptom

To the 9/11 Responder Community,

In follow-up to our recent study on WTC related neuropathy we are conducting a survey to determine the incidence of neuropathy symptoms in responders.

You may have heard about our preliminary study that suggests that there MAY be a link between development of neuropathy symptoms (numbness, tingling and weakness of the hands and feet) and exposure to WTC Dust.

We need your help in our research to determine whether there is indeed a link.

It will only take a few minutes of your time to complete this online survey.

We also need responses from those who did not work at Ground Zero to use as controls for comparison . It would be helpful if your friends and family that were not at Ground Zero could complete the

survey as well.

We are using survey monkey and no personal information or other identifiers are required.

The survey can be accessed at

https://www.surveymonkey.com/s/wtcneuropathy

As always we are grateful for your assistance. With your help and participation we have learnt a great deal

about the unfortunate health consequences that occurred as a result of the brave work done in the aftermath of the 9/11

terrorist attacks. Working together we are hoping to gain additional knowledge that will help the 9/11 community.

Marc Wilkenfeld MD

Marc WIlkenfeld MD

Chief, Division of Occcupational and Environmental Medicine

Winthrop University Hospital
1300 Franklin Ave

Suite UL4-A

Garden City NY 11530

516 663 8890

I was at ground zero on 9/11. I am now suffering from nerve damage to the extend that I can do very little. My condition went untreated for years, because the WTC clinics would not treat any one for nerve damage due to a list of symptoms or illness made by the government, and the gov. told the drs. if they treated any one for anything not on the list they would not be paid, and the WTC clinic would lose its funds. I was told this by a dr. at Roosevelt Hospital's WTC at a meeting with others fighting for proper health care for WTC victims.) Honestly, typing this is painful due to nerve damage.

Welcome artblop.

Hello Artblop, i also have peripheral neuropathy due to toxic exposures at the world trade center on the day of and the months following the attacks. My PN started in October of 2001 with numb big toes and progressed from there relatively slowly up my legs to past the knees and my hands and partway up my forearms. EMG/NCS has shown that i have severe axonal pn in my feet and lower legs and moderate to severe in my hands.

you are correct, the world trade center medical monitoring program will not treat peripheral neuropathy because it is not a recognized illness due to world trade center exposure yet.

maybe you could post more about your exposure, what you were doing and how it progressed etc. it would also be a good idea to fill out that questionairre from winthrop about world trade center exposure and nerve damage. they are currently still doing studies on the effects, which may help us to get nerve damage recognized as a world trade center illness.

The 9/11 dust, i saw documetary back a few years ago, people got numerous medical conditions fromt he dust. ASTHMA, leukemia, alot of cancer cases.

As a husband and wife that met at 9/11, it is encouraging to hear peripheral neuropathy may finally be recognized as a 9/11 condition by NIOSH. It is an established 9/11 condition by 9/11 NYS Workers' Compensation. We both have small fiber neuropathy confirmed by skin biopsy. Please keep us updated. The article and doctor's information was very helpful.

Dr. Wilkenfeld,

Thank you for studying peripheral neuropathy among 9/11 first responders. Have you heard of any neuromuscular disorders? I have small fiber neuropathy along with autoimmune conditions. I am in the process of having my neuromuscular condition, that is possibly autoimmune, diagnosed.

I would appreciate any insight you or anyone else might have as from a medical standpoint, I am very complex. I have several 9/11 conditions that overlap symptoms.

Many thanks,
9/11 Hubbynwife