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Old 09-19-2014, 05:23 AM #16
JHop11 JHop11 is offline
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Join Date: Sep 2014
Location: NC
Posts: 23
10 yr Member
JHop11 JHop11 is offline
Junior Member
 
Join Date: Sep 2014
Location: NC
Posts: 23
10 yr Member
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[QUOTE=Aussie99;1097017]Sorry to hear you are not well. There is a phenomenon of post viral or post infectious small fiber neuropathy. Its selective to the small nerves through a process of molecular mimicry. It usually happens after an illness such as flu bug,virus, gastritis, or other infection.

If eyes are involved it could also be a Miller Fisher Syndrome variant.

The good news is that people who have had this have posted recovery over time. So there is much much hope. Although it can be a bit slow... and often times things may seem to be getting worse before they actually get better.

The only thing I want to remind you is to REQUEST "copies of ALL your lab reports,tests,and neurological exams". I have heard too many times doctors saying tests were within normal range but the test was actually ABNORMAL for that patient.

Try to get a copy of your Skin Punch Biopsy and MRI radiology report. You may have to get a 2nd opinion. I find it unusual that you have all these symptoms but you have a normal skin punch biopsy. This does sound like small fiber to me. I am not a doctor but I too have all these symptoms. Mine started during a long bout of Gastritis with H. Pylori infection.

Wishing you good health.
Aussie[/QUOTE

Thank you
Before my skin biopsy, both my neuro doctors were convinced it was small fiber due to infectionbut then we got the biopsy results and was negative. Of course there are false negatives.. But my concern is if its small fiber, how come it is not sticking to my hands and feet mostly? I thought most poly neuropathies are distal and rarely go into your trunk.
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