I think the reality here is that we have to try new things. The only alternative to that is to give up. I have spent THOUSANDS of dollars on various treatments for this. Most did nothing but some of them helped. I know that every person responds differently to each method. From my own personal experience I have found that removing toxins and inflammatory foods from my diet has made a huge impact. Diet,in my opinion, is the foundation and the rest you build from there. Just some thoughts to ponder. I was really super hopeful for that CET though. Oh well.

You're right, we do have to try things. I go back and forth. On good days, I feel optimistic that maybe I am improving. Then all hell breaks loose and I am bed ridden for days, then another good day, then... you know what I mean.

I also believe in a good diet. I don't have anything to correct there. Every day I consume kale, spinach, ground flax, pea protein, pumpkin seeds, nuts, fruits and other vegetables and grains too. I do low sodium (used to have hypertension that actually went away when I got PN, if you can believe that) and almost no sugar.

I too was hopeful about CET. I'm not ruling it out yet. I too have spent thousands, tens of thousands on everything I can get my hands on. Some are really useful tools but I've desperately got my sights set on regeneration right now because just like you said, the alternative is to give up.

I am extremely obsessed with regeneration and thought I had some at one point. I wonder to what capacity can a nerve regenerate if there is still an active process that continues to cause damage, which I believe is the case for me.
At any rate, by all means go for the CET. Insurance covered mine and it wasn't that expensive. They billed it as nerve blocks and electro stim.

I believe I have an active process going on too.

I am open to CET if it comes here but I won't travel for it without seeing additional results. With new treatments I always hope they are at least onto something that will lead to something.

Beatle I also have SFN in my entire body except the left side of my face. I find your results with medical marijuania very encouraging. I am praying we get our governor in PA voted it. I will definitely try it when it becomes legal here.

I have tried it in the past but I do not like the feeling the THC gives me. I couldn't tell you if it worked I was too focused on the high feeling.

I want it to be legal so I can get some with the higher CBD.

Hi Hopeful, I hope it becomes legal in PA too, and everywhere else, it's just a matter of time. There are strains available with just about every ratio of CBC:THC. It doesn't help everyone but it does help many with chronic pain.

I've pretty much got my pain under control, other than flares. My biggest challenges now are numbness, balance and coordination and not having my underlying cause indentified and treated.

Hang in there

I just yesterday read about this stuff:

http://en.wikipedia.org/wiki/Mitragyna_speciosa

Anybody tried it?

Yes it is called Kratom. In my personal opinion it is wonderful, for my pain anyway. Unfortunately it is illegal in my state now due to an incorrect classification as a synthetic drug. Nice while it lasted. It is still currently legal in almost every state.

Let me preface this by saying I am not an expert on opiates. Kratom works as a stimulant at low doses and and has more sedative like effects at a higher dose. Though it is not an opiate itself it does, however, act on the MU opiate receptors at higher dosages.

The FDA has issued an import ban on Kratom, which in no way do I believe was for public safety, rather because it has been catching on as a safe, natural, herbal way to relieve pain (sound familiar?). Some in the media have recently attempted to draw association between Kratom and a few deaths, however the evidence of their relation is very sketchy.

Kratom has a lengthy history of safe use. I'm really passionate about this one as prescription pain killers are tied to countless deaths. Contrast that with Kratom, which is much safer.

Personally I would not take it while on any other pain meds. It may not be around much longer so......

It is legal here but I have not tried it.

It can be habit forming and people can experience symptoms similar to opiate withdrawal when stopping after extended use. For me I became quite depressed and experienced "flow of tears" when I stopped. Hands down this was the best thing I ever tried for my pain, however. I could go on and on. It really frustrated me when this was (and still marketed as) a "legal high" because whenever something natural is presented in that way it loses legitimacy as a viable medical treatment.