Hi, all... I've been reaching out to fellow NeuroTalkers for support and knowledge since the onset of my neuropathy, now several years ago. The history in a nutshell... bad, bad virus followed in a couple months by severe body-wide nerve pain, including my face and mouth, nose, throat. Everywhere... so I thought, until the last couple months. Now, Oh, my God, it's everywhere in my most private areas. I burn, ache, stab and twist in places I didn't even know existed. I've researched my symptoms and come up with Pundendal Neuropathy. I'm wondering if anyone has ever experienced this type of small fiber nerve damage from an autoimmunue response?
As Always... thank you for responses.

I have CMT, hereditary neuropathy, and it has progressed to my hips. I have many of the symptoms of pudendal neuropathy, but they are, mercifully, intermittent. I have Valium specifically for attacks.
It is horrible and embarrassing and I desperately hope it doesn't get worse. I can empathize.

I had self-diagnosed pudendal nerve entrapment a few years ago when I tweaked something exercising, and it was brutal. The symptoms were so bizarre, but unmistakable once I saw the symptoms of PNE. I managed to get rid of the problem by doing a lot of stretching, but I know I was lucky.

I certainly hope your bout with pudendal neuropathy is short-lived. It can't be pleasant.

I had alot of strange pain when i was having
That drug reaction to lisinopril.
Drug induced lupus can also cause inflammation
And nerve pain.

Anyone with new PN pain symptoms should
Consider ACE drugs for blood pressure
And discuss a drug change with their
Doctor.

Drug induced lupus involves lots of other
Drugs as well-- you can find lists of those
On Google.

--usually involves compression of the nerve as it winds through the pelvis--but I certainly think that other conditions that compromise nerve conductivity, from diabetes to toxins to autoimmunity, could make one more prone to compressive effects in line with the "double crush hypothesis".

Take a look at:

http://www.pudendal.org/

http://www.pudendalhope.info/node/9

http://www.pnfdn.org/about%20pn/about%20pn.htm

I have had bouts of this off and on for quite a while .I finally had a Urologist diagnose this for me she got me in to see a physical therapist that specializes in Pundendal issues. And yes in all the very private parts they specialize in internal physical therapy. Yes yes it is very intimidating but i had a wonderful compassionate therapist and was able to get to a point where it was bearable .Alas my new and improved insurance will no longer cover anything that will help me just pills and more test .I hope you find your best for you T

Welcome Future T.

Future T... and everybody else. Thank you for your responses. If it weren't for you all I'd be forever lonely in this most dreadful of experiences.