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Help! the neurologist told me today there is nothing that can be done.

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Old 10-17-2014, 08:49 AM #1
Susanne C. Susanne C. is offline
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I have no family history of neurological diseases. My symptoms are very troubling, I can't lift my right hand and my both thumbs at all and it has progressed, there is big muscle atrophy, so yes, I do get upset when a doctor tells me he can't do anything without a proper check, or re-check. I will try to get my old clinical results from 7 years ago, because, maybe, something was missing, badly interpreted, or overlooked.
Have they tried physical therapy? I had a flare up about six or seven years ago and couldn't even take wash out of the washer, my hands were useless. Even with the disease process we were able to get most of the strength back in my hands and arms and return to a slower rate of progression. Physical therapists often know much more about what can and can't be regained than doctors.
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Old 10-17-2014, 08:53 AM #2
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I have tried physiotherapy myself, this year from January till June, and I've noticed a rathe small improvement. Could you describe what your physiotherapist did with you? Mine was just stretching (painfully) my both arms and hands. I sometimes had pain afterwards, it might have triggered an inflammation.
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Old 10-17-2014, 09:11 AM #3
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How long has this been going on with your hands?
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Old 10-17-2014, 09:38 AM #4
aneczka aneczka is offline
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Kitt, my right hand since late 2006, my left since this January and the left is worsening
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Old 10-17-2014, 01:19 PM #5
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Kitt, my right hand since late 2006, my left since this January and the left is worsening
Any other symptoms? Anyone else in the family have anything similar? Another EMG with a good neurologist might be in order since something was bothering them about the results of the one you had.
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Old 10-17-2014, 02:24 PM #6
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No other symptoms, Kitt, and no neurological disorders or anything similar in the family. I will do an EMG next week.
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Old 10-17-2014, 03:04 PM #7
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OA and RA -- osteo arthritis and rheumatoid arthritis



Do you notice if you have forward head posture, or forward/hunched/rolled shoulders? Viewed from the side in a mirror? or ask a friend..

Those postures can close/pinch/impinge the area where many nerves and blood flow to the arms and hands..
Also does your armpit feel tight or puffy?
Neck muscles tight or burning, same for upper back?

http://neurotalk.psychcentral.com/album.php?albumid=422
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Old 10-17-2014, 04:02 PM #8
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Regarding symptoms, I forgot about fasciculations. I had a lot of them 7 years ago on my left hand and forearm, now less but they do happen. I have them on my left hand also, on the hand and forearm with a pinching sensation. I've noticed them today also on my right upper arm, and I dont like it, because it makes me think the disease- whatever it is - is progressing not just to my left side, but alo upwards.. (
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Old 10-17-2014, 09:15 AM #9
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Quote:
Originally Posted by aneczka View Post
I have tried physiotherapy myself, this year from January till June, and I've noticed a rathe small improvement. Could you describe what your physiotherapist did with you? Mine was just stretching (painfully) my both arms and hands. I sometimes had pain afterwards, it might have triggered an inflammation.
We started with stretches, then moved to baby weights, very light, wrist curls, windshield wiper movement, nerve glides. They always went very slowly and finished with the tens unit and ice. The more that you describe your symptoms the less it sounds like neuropathy, at least any that I am aware of. Did the therapist give you any feedback as to their thoughts?

Therapy often triggers inflammation- that is why the ice and ibuprofen are so important as follow ups.
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Old 10-17-2014, 09:42 AM #10
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Susanne, my physiotherapist is skeptical of doctors, apart from orthopedists. He thinks it a form of repetitive strain injury caused by hours of PC work, plus that my nerves might be trapped/pinched somewhere on the way. He does think in a mechanical way, like a real physio should do There is probably only one way to find out: MRI of shoulders and both hands.
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