[Stacy2012]

I'm looking for some who has nueropothy from hypothyroid that has tried B12 and had successful results????

Doctor keeps saying my problems are ALL from thyroid. Im not entirely sure that is my only problem but I am trying the B12 in conjuction with thyroid meds to see if my neuropothy will get better.

Anyone else?

[ger715]

Originally Posted by Stacy2012

I'm looking for some who has nueropothy from hypothyroid that has tried B12 and had successful results????

Doctor keeps saying my problems are ALL from thyroid. Im not entirely sure that is my only problem but I am trying the B12 in conjuction with thyroid meds to see if my neuropothy will get better.

Anyone else?

I had been hyperthroid, then about 5 years ago; went into hypothroid. No one every mentioned; including my endocrinologist, the neuropathy was due to the throid. But, just thought I would mention....about 6 - 7 months ago; started taking among a few other supplements, methycobalamin B12. At first, thought things had improved a bit; but now everything is about the same with very little, if any, change.


(Gerry)

[Aussie99]

Originally Posted by ger715

I had been hyperthroid, then about 5 years ago; went into hypothroid. No one every mentioned; including my endocrinologist, the neuropathy was due to the throid. But, just thought I would mention....about 6 - 7 months ago; started taking among a few other supplements, methycobalamin B12. At first, thought things had improved a bit; but now everything is about the same with very little, if any, change.


(Gerry)

Hi Gerry,

Can I please you ask did you get neuropathy from the 5 years you were in hyperthyroid or after when you went Hypo?

Also did you have Graves?

Thank you,
Aussie

[Aussie99]

Originally Posted by Stacy2012

I'm looking for some who has nueropothy from hypothyroid that has tried B12 and had successful results????

Doctor keeps saying my problems are ALL from thyroid. Im not entirely sure that is my only problem but I am trying the B12 in conjuction with thyroid meds to see if my neuropothy will get better.

Anyone else?

It wouldn't hurt to get copies of all bloodtests including your thyroid levels over the period of time in which the neuropathy first became apparent. This will let you analyse your hormone levels over that period. Also you did not mention if you had autoimmune thyroid?

Aussie

[Stacy2012]

I have not been tested for Hassimoto yet, however I went to the doctor yesterday and we discussed it and will be testing for it soon.

All tests are recent, this is all new as far as testing and doctors go for me. However, symptoms date back prior to discovery of thyroid issue, but I didnt realize what was going on, it started in feet but came and went off and on and I ignored it until i simply could not ignor it any longer and that is when thyroid testing was done.

[ger715]

Originally Posted by Aussie99

Hi Gerry,

Can I please you ask did you get neuropathy from the 5 years you were in hyperthyroid or after when you went Hypo?

Also did you have Graves?

Thank you,
Aussie

I had spine fusion about 5 1/2 years ago. The neuropathy started shortly aftr the fusion, pain meds and additional surgeries. I became hyporthroid before all this happened.

Yes, I did have Graves. I was given a routine blood test and without my knowing, the doctor ordered throid testing. I had no idea I had throid disease. This was about 15 years ago, I remained hyperthroid (Graves) for several years. Went into remission for a few years. My endoctrinologist said it was unusual to go into remission; but I did.

Then about 6 or 7 years ago; started with hypothroid. Since I had throid disease my endocriologist had throid blood work done every 6 months; even when I was in remission. That is why, when I became hypothroid, I was aware of it. Started taking synthroid. I still go for blood work every 6 months in case the need arises for change in prescription.

(Gerry)

[DWilliams]

Hi I have been diagnosed with MMN and have hypothyroid, the best things I have found to help with symptoms are b1 b3 niacin not niacinimide (note a flush is normal but I found it help with fasciculations once the flush passed) b6 b12 and omega fatty acids. Calcium Magnisium and Zinc all help as well but interact badly with synthroid and levothyroxin so avoid taking these minerals for 4 or more hrs after your thyroid meds. Good luck this info took a lot of guessing and trial and error. I wan't givven any link between low thyroid and MMN myself but am interested in you case as it sounds similar to my own.

[Stacy2012]

What is MMN?

I am not on the sythetic thyroid meds, I am on the natural desicated hormone meds, Nature-Throid.

I did feel B12 had slightly improved my neuropathy but not so sure really. I am not sure what my nest step is.

When you list the supplements that help you with "symptoms", what symptoms are you talking about?

thanks!

[DWilliams]

Originally Posted by Stacy2012

What is MMN?

I am not on the sythetic thyroid meds, I am on the natural desicated hormone meds, Nature-Throid.

I did feel B12 had slightly improved my neuropathy but not so sure really. I am not sure what my nest step is.

When you list the supplements that help you with "symptoms", what symptoms are you talking about?

thanks!

MMN is Multifocal Motor Nuropathy,

It is apparently very rare and I only recently got it correctly diagnosed but it has has the symptoms of faciculations in one arm one leg and half of my face as well loss of muscle and ability to use most of my left hand.

What I noticed the b vits helping was the spasms and faciculations, before taking them my hand used to get locked up painfully in a grotesque claw and I would need to use my other hand to unlock it. Now it is weak and still faciulates but doesn't lock up.

Anyway it is not a cure but my quality of life was improved by the supplements in my previous post.

I hope the best for you.

[Stacy2012]

thanks for sharing, hope the best for you too!