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Old 11-26-2014, 11:30 AM #9
jenng jenng is offline
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Join Date: May 2013
Posts: 135
10 yr Member
jenng jenng is offline
Member
 
Join Date: May 2013
Posts: 135
10 yr Member
Default I'm sorry you are going through this so young...

Unfortunately, neuropathy without an obvious cause can be a long and frustrating road if you are looking for answers. My advice would be:

Have the emg/ncs repeated at a large teaching hospital with a neurodiagnostic dept. Having inconclusive results should get you a referral there as far as your insurance goes. Try to have all 4 limbs tested. Download the spreadsheets from www.lizajane.org. Get copies of all scans, reports, labs & organize in a binder. Take this with you if you can get a consult with a neuro at a teaching hospital. There are quite a few metabolic/autoimmune factors that can cause nerve damage.

Pay attention especially to B12 level and vitamin D. MrsD has stickies about these and tons of great information about supplements. Also do a search for mthfr mutation, a genetic mutation some of us have that affects the methylation pathways of B12 and folate.

Diet--cutting down on sugar and other simple carbs. You could try an elimination diet like the Whole 30 to see if it makes a difference in your symptoms.

Hope this helps!
__________________
Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.

Last edited by jenng; 11-26-2014 at 11:32 AM. Reason: add info.
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