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Old 06-11-2007, 12:13 PM #31
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Default Oral B12 vs shots

If you take at least 1000 mcg per day of methylcobalamin it is better than the shots regimen. You would have to be an extremely rare (if the chance exists at all) case to need the shots.

If you want to get the most out of your B12, take it with nothing else.

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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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Old 06-11-2007, 12:38 PM #32
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Roxie.

Go to the thread that's titled Stress and PN. Look for all the posts by Rick. As you look at them, find the post that shows you how to imagine yourself in snow, putting your feet in snow, looking round, noticing the environment. He really goes into detail.

I've been doing that.

He also explains all about hynosis.

Let me know how you do!!!



Mel
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Old 06-12-2007, 10:54 AM #33
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HI Rose! Ok I'm taking my B-12 500mcg by itself twice a day and will increase the dose as my bladder allows. With having Interstatial Cystitis it's so difficult to take meds and supplements without being in major bladder pain. Roxie
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 06-12-2007, 11:02 AM #34
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Good Morning Mel!
I read Rick's posts.......very interesting! I wonder what senerio he would want me to visual since I don't have burning feet but aching arms and legs?
I'm going to try to get my insurance to pay for a neuromuscular massage therapist for me. I found one who sounds like maybe she'd be able to help with some of the pain I'm having. The Lyrica isn't helping as much as I'd like and I hate the side effects! I have swollen ankles and hands and weight gain I don't want!
I started taking the B-12 once in the morning and once at night to start with......and will increase as my bladder permits. I sure hope it helps over time! Having IC is such a pain also. I have such a hard time taking most pain meds and lots of vitamins and supplements. I feel like I'm between a rock and a hard spot trying to take meds! GEEZ!
Hope you are having a good pain day. I'm not too bad now that I've been up for an hr. I woke up in leg pain this morning though Take care....Roxie
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 06-12-2007, 02:55 PM #35
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My heart goes out to you. Between neuropathy and the IC thing, I think I would go out of my mind. I remember those bladder spasms and I had them for YEARS!! Not too much fun, I remember this vividly.

So just try and visualize being in a sunny beach in Hawaii, with the nice sand between your toes, It's not too hot, not too breezy, you are laying on the beach with a nice Marguerita in your hands. Now I don't drink, but if I did drink, it would be a nice Marguerita. I tasted it once. Thank god I don't drink!!! It was that good.

So just imagine yourself on that beach, you look around and the ocean is green and lovely. I actually was in Puerto Rico when I was 18 and the beach was heavenly and the water was an absolute green. I never forgot that image.

When I was on the beach, a guy came up to me and said Hi!!!! Because I was overweight, and had no self-esteem, I looked around the beach and there was no one else even near me. I said to him "Are you talking to me??" See what low self-esteem does to you!!!. He laughed and said "sure, and sat down next to me". Believe me, I had nice time that day. Green beautiful water, and nice sandy beach.

so just imagine.

Melody
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Old 06-12-2007, 05:19 PM #36
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HI Mel, I love the beach! We go to Galveston and sit out on the jetties about every other month. It's great for stress. It feels SO good to get away!
I talked to my therapist today about hypnosis and she told me she does hypnosis on people so on our next session she's going to try it on me! I'm excited about trying it.
I started going to a therapist 2 months ago because I felt like I was going crazy from all the pain I was in and trying to keep up with all the medication and tests I had to do before we finally got to the Nerve/Muscle biopsy diagnosis of Neuropathy. At least now with the diagnosis I feel vidicated that I'm not crazy! When I kept doing tests that kept coming back OK I started wondering if I was in pain after all if nothing was wrong with me! It's crazy how your brain works on things like that!
I have a great Rheumatologist and a great husband who's been SO supportive through all my illnesses and sat with me thru all the nasty tests. Now if I can just get this nerve problems under control! Roxie
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 06-12-2007, 07:58 PM #37
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Default Tests, some diagnosis and NO you...

are not one WHIT crazy? IT is a real 'something'!

Doesn't that help ever soo much? Doesn't change much, other than the fact you really have 'something'... Next steps are what to do - best to do - and, how to do - something about it all.

Further steps, wait for the results, read up on stuff, and ask questions.. We ALL have been somewhere that will be useful to you.

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Old 06-12-2007, 09:07 PM #38
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Default Crazy

Only about the beach the ocean and your nice husband,good
for you roxie. If that med bothers you call your Dr. no good if
it adds to discomfort to your pain. Yep i know it get's hot in Texas
to,boy howdy. Take care. Sue
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Old 06-12-2007, 09:15 PM #39
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Talk about self-hypnosis, I need to do that big time tonight!!!!

I walked into the bathroom (very slowly, because last week there was that big disgusting waterbug) and every time I walk in, I slowly pull back the shower curtain and take a tiny peek into the bathtub. I do this every night before I take a shower.

Well, lo and behold, I walk into the bathroom, peek behind the shower curtain and there's this tremendous brown thing right on top of the bathtub drain. Now someone please tell me how a waterbug fits through a drain??. It had to come via this way because I plugged up every hole in the bathroom. I put contact paper over the radiator. I sprayed inside the cabinet under the sink. I keep the cabinets closed. I don't ever go there because I don't store anything there. I checked just in case and it was clean.

So I'm thinking, it had to come out of the bathtub drain, because I also put a strainer mesh thing in the sink. And this thing was laying right on top of the bathtub drain!!! So naturally Melody starts screaming, I run into the living room where Alan is resting comfortably, I grab him and order him to 'GO AND KILL THAT THING IN THE BATHTUB".

Alan goes into combat mode and grabs the can and opens the shower curtain and he goes 'oh my". and gets him.

Then he told me it was safe to go in. He cleaned up every thing.

Now I'm going to throw up!!!!

UGH!!!

lol mel

And I do apologize for going off topic.
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Old 06-12-2007, 09:53 PM #40
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OMG Mel!
I thought we had big brown ugly bugs here in Houston! LOL I used to do that same routine you mentioned...we'd have those nasty Wood Roaches in our shower of our other house! They are the most disgusting things and they can fly!!!
One morning I opened my closet and one of those dreadful creatures flew right at me! I screamed like crazy and ran for my exhusband to come and kill it! He had to chase it around the room a few times before he could smash it with his shoe! Now I am on roach patrol all the time! I buy those big roach traps and I have them Everywhere in the house and I spray. We have decreased them drastically this summer so far. It's when it gets very dry outside that they get really bad and start looking for water.....toilet water! lol It's amazing how those things can squeeze in the smallest hole to get in the house.
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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