Wow.... I am so sick of hearing it. Since my nervous system and life has been under attack and I am struggling through the days, it seems everyone likes to tell me how I look. I don't care. I want my life back.

and....sorry to disappoint the few people I see who even know that I have a "disorder", I feel terrible. Sorry if that makes you uncomfortable!

It seems like the expectations after 5 months since that trip to the ER, that some of my extended family members are just sure that I must be better by now. I get it! I should be, because what the heck is making my nervous system go completely haywire anyway???

Any advice? What to you say at this point when you are feeling this badly? Is there even a point? Should we smile and say good, yeah better, great... as there are icy hot needles pricking and muscle spasms, numb body parts, dizziness........just to appease?

Just because I'm not complaining every time I get stabbed in random body parts or that my vision can't see straight sometimes doesn't mean I am normal. Actually I feel like an alien.
Wow. I feel better now that I just got that out of my system.