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Old 02-04-2015, 05:26 PM #4
Healthgirl Healthgirl is offline
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Join Date: Dec 2014
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10 yr Member
Healthgirl Healthgirl is offline
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Join Date: Dec 2014
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Quote:
Originally Posted by en bloc View Post
They are usually hesitant about prescribing narcotic pains meds until AFTER you have tried everything else (Cymbalta, Neurontin, Lyrica, Lamictal, etc...the list goes on and on).

If they have concluded the findings as to the cause (autoimmune), then they should be considering IVIG as well.

You should also consider some of the supplements MrsD suggests...can't hurt to try. BUt what ever you try, do so one thing at a time otherwise you won't know what is helping or what is giving you side-effects.
The thing is, they say yes it is probably autoimmune, but due to the amount of autoimmune antibodies that don't have test yet, they can't find it so it doesn't qualify for IVIG??? They also say it could have been triggered by a virus and throw their hands up and offer symptom drugs.

Yes I take all of the supplements effective for nerve health/repair and then some. At least it makes me feel proactive in some way.
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