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Old 02-10-2015, 04:46 PM #15
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
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MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by Synnove View Post
Mat,

Often when one has SFN one also have autonomic neuropathy. You could ask you neurologist the next time you see him regarding work up for this.

regarding your GI for example, have a gastric emptying test, there could be gastroparesis. There could be gastric reflux called GERD, which often happens with neuropathies.
Autonomic neuropathy would further be manifested by a Shrimer's test for dry eyes.
Did you have cardiac tests for autonomic neuropathy?
I didn't have any cardiac tests - just nerve conduction, mri of brain and neck (all normal) plus the awful lumbar puncture (7 attempts to tap!) and serum bloods.

However I did wear a Holter monitor last June for severe heart palpitations and dizziness (later found to be Amitriptyline). My heart was sound apart from ectopic beats which have stopped now. I have bizarre sweat patterns now and have lost my sense of taste and smell as already said. I believe these might also be connected to autonomic neuropathy?

I did tell the neurologist all this and wrote it all down for him. I was told by my opthalmologist that my eyes are pathalogically dry. He doesn't use the Schirmer's but instead he used a tear break up test which he says is more up to date and accurate. I use drops and ointment daily. My teeth are fine and I never have corneal ulcers so I'm told that it's all part of my RA rather than Sjogrens.

I guess I will just have to wait and see what the neurologist surmises. Unfortunately if nothing else flags up I think it will be seen as a rheumatology matter and as I've said my rheumy consultant isn't a very forward thinking at all.
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