My ENT testing from a local teaching hospital has been completed.

My rotary chair test showed normal function of the balance system in the ear and ear nerve pathway. The VNG test showed no signs of an inner ear problem. It did show "up-beating" nystagmus which is an indication of a central, or brain, balance dysfunction.

So I guess that my diagnosis is most likely central vestibular disorder or problem in the brain balance system. I've already had a MRI. So I, for the life of me, am having a hard time understanding what the etiology could be. This is so frustrating!

That seems to mirror my situation. I contacted my Neurologist that I used a few years back for my PN. She is director of the Neurology/Neuropathy Dept. at Kansas Univ. Med Center. She suggested that my balance-issues and dizziness might not be totally related to my PN. She suggested that I obtain a referral for an MRA which I am scheduled to have in 4 days. This will analyze the arteries, unlike my MRI which I had.

Good luck. I'm still enduring the walk "on a suspension bridge" every single day.

Well that is interesting about analyzing the arteries. I will definitely follow up with my neurologist and see what she thinks about that.

I'm not sure that I entirely agree with my central vergito diagnosis. My ENT assessment took place 1 year after onset, which makes it more difficult to assess according to the audiologist. I can thank my HMO for not making that referral....ugh. Thankfully the neurologist at the teaching hospital saw the nystigmus and made the referral to ENT. I also have pain in the left side of my face sometimes, which is very MS like and is what landed me the MRI of the brain and spine. It's almost as if someone is putting pressure on my cheek bone and behind my eye. I have a hard time seeing clearly often and have pain up the left side of my throat as well. This came with the body-wide burning (more upper body - face, back of head, neck, arms etc). What a confusing bunch of symptoms. It almost sounds like vestibular migraine...which seems like another wastebasket diagnosis, frankly.

I did have roaring tinnitus in my left ear for months at onset. And I actually had 48 hours of hearing issues last summer. It was like the volume level was turned up in my left ear. I also heard things in a higher pitch in my left ear (as compared to the right ear) and it would also split into 2 sounds. I'm sure there are ENT medical terms for this, but I haven't put much research into it. The audiologist told me to call them immediately if this happens again. I'm just so drained...