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Old 06-12-2007, 07:53 PM #1
shiney sue shiney sue is offline
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I remember Meniere's disease,my cousin use to describe it in those
words. It's a increases pressure in your ear,like fluid,it messes up
your balance but if i remmember it's fairly rare. But she said it made her
dizzy and had that out of body experience. Wow don't you have enough
problems stop it right now. Self-help cut down on salt sometimes fluides.
You might need a diuretic,there are pills but try some asparagus, When I
lay down to long and get up i kinda have this feeling,it could be a med.
Did you mention this to the Dr. Sue I wish we all felt better.
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Old 06-12-2007, 07:59 PM #2
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Alan had Menieres syndrome a few years ago. The vertigo was really bad. Had to go to the emergency room. They said "you have vertigo". Like we didn't know what he had. They gave him Meclizine. It makes you drowsy.

He went to the ear nose and throat doctor who told him "you have menieres, stop eating salt. Alan stopped the salt and I think he has had one (maybe two, 3 second bouts of vertigo in as many years).

In his case, no salt equals no vertigo. So I make sure everything I give him is sodium free. I don't cook with salt or anything.

I could never eat a no salt diet. But since he puts honey and splenda on everything, well, he doesn't miss it.

I use light salt myself.

Melody
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Old 06-12-2007, 08:17 PM #3
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Thank's Billye,
I have a question for you if you don't mind. Who diagnosed you with
your Sjogren's Syndrone? When you have flare ups,do you get fever,
excessive fatigue,ackes and pains,choking on food and pills. Besides
all the rest and boy those sweats. And have a hard time talking?
Also any weight lost or vasculities. Going to new Reumy this week,
seems like you get passed around alot. Im sorry everyone just feeling
awfull and saw Billye's post. And teeth ouch.mine started with a pain
behind my ear and down the side of my face,lemon drops helped that
for a while. I want that Dr. who use to come to the house,but i would
have to clean first. Sue D hope that Neuro helps.
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Old 06-13-2007, 07:59 AM #4
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Default Yes to all

Shiney Sue, I'd have to say yes to all your symtoms. There is a Sjogren's Forum over at www.sjogrensworld.org There are a lot of good people there who suffer from this disease. Why don't you hop over there get yourself signed in and you can probably get a lot of your questions answered? It may take a little while to get your membership approved because it is run by a small group of volunteers some of who have children and full time jobs. But it has been my Sjogren's home for several years now.

Oh..my Sjogren's was actually diagnosed by an old doctor in rural Texas and later confirmed at Mayo Clinic in Rochester, Minn.

Billye
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