Hey Sue:

He didn't get the pump YET!!!

We shall see. Delivery is on the 18th!!

keeping toes and fingers crossed.

be well

Mel

Melody, i am sorry i haven't been keeping up with all of the posts regarding this, how is he going with this treatment anyway, has it made differences ?

Hi Brian:

I'll be honest. When we first were told about IVIG, we probably didn't understand the whole concept and what it would do. The doctor said "it migh help, blah blah".

Now I gather, it doesn't get rid of the pain (the day of the IVIG, his pain goes away) but after that, it had a very little affect on his pain, but he says it has helped his balance. So will they continue with this? I have no idea.

At his next appointment with the neuo, I gather they will discuss whether or not to continue this until October (he's approved until October).


Melody

Ok, thanks Melody, it's a pity that the benefits don't last longer than they do, but 1 day without pain is a lot better than none and the balance issue is a positive too, i hope the more treatments he has, will bring more lasting rewards.
all the best
Brian

Thanks Brian:

Yeah, all we really do have is hope, and more stress-free days!!!

Wishing the same for you!

Melody

Hey Mel:

I was on the IV's in the early 90's. Two good things I recall about the infusions were that, my healing improved dramatically and it helped the weakness considerably. I had lower body weakness at the time and at first the doc said he thought it was from steroids. After I began the infusions that totally went away. (Now I have upper body weakness.)

I don't know what slow nail growth has to do with connective tissue disease, but mine also began growing like mad and were very long and strong. Overall, I felt a lot better. Some of the neuro symptoms cleared up. I would do these again if I could...

Glad Alan is getting a pump. He is one lucky guy to have you running interference for him.

Cathie

Thank you Cathie:

I only wish that someday, there might be someone to do this for me, (god help me, I hope I don't need any interference). See, there's usually one spouse that Does stuff. I'm that spouse. Comes easily for me.

I thought, when I got older, my son would be there for us. But that is not to be. Takes a lot of getting used to believe me.

Oh well, when I'm not fighting waterbugs or ants, I'm cooking up chicken and patatas. Just made honey teriyaki chicken. Alan about went out of his mind when I gave him a sample. I wish I could use Sesame seeds but he's got diverticulitis (never had any problems with that, they found it during a routing colonoscopy) so that means no seeds, right?? But a sesame chicken is to die for if you know how to cook it.

Hopefully the pump will arrive and I'll know what do to about it.

Hope you're in fighting form today!!! lol

Melody