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Old 03-04-2015, 04:01 PM #11
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Hi canagirl
I have merged all your separate threads into this one as it makes it much easier for others to reply to the one topic, especially as the questions are related.
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"Thanks for this!" says:
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Old 03-04-2015, 05:06 PM #12
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It looks like you need to get a skin biopsy for small fiber neuropathy to rule that out.
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Old 03-04-2015, 05:54 PM #13
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When I was diagnosed with idiopathic SFN last year, my neuro prescribed a low dose of gabapentin to see if it might help with symptoms. After three months, I wasn't convinced it was helping, so I had a choice of either increasing the dosage or stopping. I opted to stop primarily because I'd rather not take any medication long-term if I don't have to.

While my symptoms have improved some, I still have a lot of discomfort with some days worse than others, but I'm just trying to cope with it. If worse comes to worse, I'll turn to cannabis which is what a lot of people here have reported helps tremendously.

Quote:
Originally Posted by canagirl View Post
Hello,

I have read many posts about people stopping their medication even though they say it was helping them. why is that? did the pain get better? I'm in sooo much pain right now I can't imagine stopping something that helped. I am not on medication right now but the pain is unbearable and I really need to try something. I am already taking supplements but they don't seem to be helping (r-lipoic acid, "nerve fix", vitamin e, vitamin c, vitamin d) I was taking b12 but my dr said my levels were very high so to stop that.

Does the pain get better? It's been about 6 months of pain and it's only getting worse. I really need to know if it gets better for most people or only worse?
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Old 03-04-2015, 06:04 PM #14
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I thought small fiber neuropathy as well (b/c what else can cause all these symtpoms?!!!?) However, the neurologist doesn't feel I have this b/c her clinical testing shows no evidence. I'm trying to get the test done on my own but it's really expensive $2000US dollars. Not only that, this test isn't performed here in Canada, there are twp dr's that will perform the biopsy and send it to the US but trying to get in is impossible.

Has anyone else been diagnosed with SFN when their neurologist said "I don't think so"?
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Old 03-04-2015, 06:08 PM #15
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Default Please help a struggling newbie! SFN & Massage
Hi all,

Does massage cause extreme burning pain for anyone? I thought it was supposed to promote blood circulation and healing so I gave it a try. During the massage I felt great. However, all night and all day today I have had EXTREME burning. The last time I tried to do some light stretching this happened as well but not to this degree. What's going on?
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Old 03-04-2015, 06:42 PM #16
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Deep message is not for me. Talk about burning. Not certain that any kind of message, except very very light, would be okay for me. Just me.
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Old 03-04-2015, 08:19 PM #17
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Quote:
Originally Posted by canagirl View Post
Hi all,

Does massage cause extreme burning pain for anyone? I thought it was supposed to promote blood circulation and healing so I gave it a try. During the massage I felt great. However, all night and all day today I have had EXTREME burning. The last time I tried to do some light stretching this happened as well but not to this degree. What's going on?
Yes, I am no longer able to tolerate massage and I have SFN.

Hope it gets better for you.
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Old 03-04-2015, 08:22 PM #18
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Quote:
Originally Posted by canagirl View Post
I thought small fiber neuropathy as well (b/c what else can cause all these symtpoms?!!!?) However, the neurologist doesn't feel I have this b/c her clinical testing shows no evidence. I'm trying to get the test done on my own but it's really expensive $2000US dollars. Not only that, this test isn't performed here in Canada, there are twp dr's that will perform the biopsy and send it to the US but trying to get in is impossible.

Has anyone else been diagnosed with SFN when their neurologist said "I don't think so"?
Yes, mine said my symptoms were skin disturbances and alluded to me being anxiety ridden and causing my symptoms. An internist luckily FINALLY listened and did the skin biopsy, and now there is a little difference in the way I am treated.

I have progressed and now have autonomic involvement too.

Hope you can get someone to listen to you soon.
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Old 03-04-2015, 09:13 PM #19
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Default Please tell me Sfn due to trauma can get better. If so, how long?
Does sfn due to trauma get better? If so, how long? It's been about 6 minths and it's only worse ( horribly). Family thinks there is no way it could get this bad that quickly. I don't know hat to do. Please, veterans I'm in desperate need of advice on how to help myself
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Old 03-04-2015, 09:25 PM #20
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Default Nortryptiline effective? Bad side effects? Troubles getting off ?
Hello,

My dr would like to try nortryptiline. I need relief from the extreme body wide burning. I'm very nervous... Is it effective ? Anybody have bad side effects? If so, what were they? Any troubles getting off? Please respond.... Thanks so muxh
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