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03-04-2015, 04:01 PM | #11 | |||
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Hi canagirl
I have merged all your separate threads into this one as it makes it much easier for others to reply to the one topic, especially as the questions are related.
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | Enna70 (03-04-2015), janieg (03-04-2015), Jomar (03-04-2015), mrsD (03-04-2015), Susanne C. (03-04-2015) |
03-04-2015, 05:06 PM | #12 | ||
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Member
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It looks like you need to get a skin biopsy for small fiber neuropathy to rule that out.
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03-04-2015, 05:54 PM | #13 | |||
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Member
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When I was diagnosed with idiopathic SFN last year, my neuro prescribed a low dose of gabapentin to see if it might help with symptoms. After three months, I wasn't convinced it was helping, so I had a choice of either increasing the dosage or stopping. I opted to stop primarily because I'd rather not take any medication long-term if I don't have to.
While my symptoms have improved some, I still have a lot of discomfort with some days worse than others, but I'm just trying to cope with it. If worse comes to worse, I'll turn to cannabis which is what a lot of people here have reported helps tremendously. Quote:
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"Thanks for this!" says: | echoes long ago (03-04-2015) |
03-04-2015, 06:04 PM | #14 | ||
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Member
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I thought small fiber neuropathy as well (b/c what else can cause all these symtpoms?!!!?) However, the neurologist doesn't feel I have this b/c her clinical testing shows no evidence. I'm trying to get the test done on my own but it's really expensive $2000US dollars. Not only that, this test isn't performed here in Canada, there are twp dr's that will perform the biopsy and send it to the US but trying to get in is impossible.
Has anyone else been diagnosed with SFN when their neurologist said "I don't think so"? |
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03-04-2015, 06:08 PM | #15 | ||
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Member
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Hi all,
Does massage cause extreme burning pain for anyone? I thought it was supposed to promote blood circulation and healing so I gave it a try. During the massage I felt great. However, all night and all day today I have had EXTREME burning. The last time I tried to do some light stretching this happened as well but not to this degree. What's going on? |
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03-04-2015, 06:42 PM | #16 | ||
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Grand Magnate
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Deep message is not for me. Talk about burning. Not certain that any kind of message, except very very light, would be okay for me. Just me.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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03-04-2015, 08:19 PM | #17 | ||
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Member
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Quote:
Hope it gets better for you. |
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03-04-2015, 08:22 PM | #18 | ||
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Member
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Quote:
I have progressed and now have autonomic involvement too. Hope you can get someone to listen to you soon. |
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03-04-2015, 09:13 PM | #19 | ||
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Member
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Does sfn due to trauma get better? If so, how long? It's been about 6 minths and it's only worse ( horribly). Family thinks there is no way it could get this bad that quickly. I don't know hat to do. Please, veterans I'm in desperate need of advice on how to help myself
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03-04-2015, 09:25 PM | #20 | ||
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Member
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Hello,
My dr would like to try nortryptiline. I need relief from the extreme body wide burning. I'm very nervous... Is it effective ? Anybody have bad side effects? If so, what were they? Any troubles getting off? Please respond.... Thanks so muxh |
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