I have had polycythemia since 2006. I now have peripheral neuropathy for more than a year. My b12 got critically low. I try to tell my neurologist this but he won't listen. Thinks it autoimmune or alcohol. I have much of the same symptoms that seem to get worse, not better. I even take two different b12 supplements twice a day. Any suggestions or opinions is welcome. I've had to file for disability due to the worsening symptoms. Depression is starting to take its toll on me.

Hi, T $porter1

How was your PN diagnosed? Did you have the EMG tests from a neurologist.

You can have RX for one of the drugs that helps with pain/discomfort.

I can say, in my experience (and I'm NOT a medical professional) it is very unlikely that PN can be treated or reversed in most cases.

Your neurologist can test for a variety of possible causes and suggest a variety of treatments, based on the tests.

Peripheral neuropathy associated with polycythemia vera | Request PDF

Sensomotor axonal peripheral neuropathy as a first complication of polycythemia rubra vera: A report of 3 cases

I can't find much about how Polycythemia is treated, but I'm sure you know.

Check with your physicians to gain a clear picture of what can be done.

Depression is a hallmark of PN. So sorry.

Regards, ElaineD