Well, that's great news on the sensory nerves, I might have to look into this procedure. Really hope you get some help on the motor nerves next time!

A new interesting article about "Practical Considerations Concerning the Use of Stem Cells for Peripheral Nerve Repair"

http://www.medscape.com/viewarticle/588020_3

stem cell therapy update...I had my second stem cell therapy Dec 7th (reminder: first was 4/8/15) From what I have read 3 treatments is best for auto immune disorders, which is what my neuropathy is believed to be from.
My feet feel less heavy and less parathesia since this last treatment. I have had some different off and on sensory sensations in my feet (which are usually numb), an aching feeling, some tingling sensations.
I have not had any significant strength return in lower legs at this time, but this past week my feet have felt less "floppy" when walking around the house without my AFO's---hoping this will continue and is the start of some motor nerve healing??
Each treatment is suppose to do what it is going to do for 6 months--so it's too early to see what second one will do at this time.

Cell Surgical Network is a chain started by two plastic surgeons who admit their work Is "investigative," yet they charge $6,000 - $20,000 per treatment. I've read of no clear successes and two deaths.

I understand your frustration, and I wish you were accepted into a genuine trial, but please continue to do research......this does seem wild.....expert guys using the same sort of clumsy procedure for a myriad of problems.

My life as I knew it is over, but I am trying to adjust....my most helpful treatment is the yoga teacher/body worker/masseuse who comes over 3x/week. Pricy, but far cheaper than CSN, and I am actually symptom free for an hour or so afterwards....the window that keeps me going.....

My best to you.

yes, the doctors are very open that stem cell research/treatment is only in clinical trial stages at this time. I wish there was more information available on it. Between CIDP being rare and adipose stem cells being new, there isn't a lot of info out there on it

Okay, so there's this: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4020887/.

It was posted on another thread here: http://neurotalk.psychcentral.com/thread205788.html. Then there is also this that was also posted on the same thread: www.cellmedicine.com and https://www.youtube.com/watch?v=Hq0vON_F-kU.

I'm looking more and more into this. It seems that a number of things are relevant to the effectiveness of this therapy:

1. Quality and number of the cells used. This also speaks to the safety of the procedure.

2. Nature of the cells used, from the patient or from a donor, and from what part. Here umbilical cord cells seem to be the most effective, short of using a fetus.

3. Whether chemo needs to be used also/in conjunction with the injections. This seems to relate to effectiveness rather than to it being the only option that actually works. It also seems to relate to how progressive or bad or extreme, however you phrase it, the patient's situation is.

Okay, so I'm really considering this. Why Panama? The clinic seems to have moved beyond used fat tissue, which appears to be more effective, and they also seem to have a state of the art clinic. But I'm just at the beginning of my research, and I don't make any hasty decisions.

The bone marrow, umbilical and host donors are different and more involved than adipose stem cell treatment. Those often involve chemotherapy and deplete the immune system-----Dr Burt was doing trials of these using stem cells from bone marrow and high dose chemo for cidp. He was doing it at Northwestern in Chicago.
I did not qualify for that trial as my cidp is considered "atypical". Do you have confirmed typical cidp--if so the trial may still be going on.
I researched for years before deciding. Whatever you decide, just be sure it is an actual hospital/dr office setting with qualified doctors. There were a lot of questionable places when I was looking.

Thanks, Northerngal. Excuse my ignorance, what's the acronym CIDP?

Also, the Panama clinic doesn't use chemo, I believe, but does use umbilical cord cells.

I believe CIDP stands for Chronic inflammatory demyelinating polyneuropathy.

Cliffman

chronic inflammatory demylinating polyneuropathy