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Old 03-25-2015, 06:02 AM #27
Rosie33 Rosie33 is offline
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Join Date: Feb 2011
Location: USA
Posts: 151
10 yr Member
Rosie33 Rosie33 is offline
Member
 
Join Date: Feb 2011
Location: USA
Posts: 151
10 yr Member
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Quote:
Originally Posted by Tunaboy View Post
Had my EMG today. I was told my nerves/muscles are normal and healthy. How can that be??? I don't think I need a skin biopsy since I don't really have much pain, just a buzzing, asleep sensation, slight burning, muscle spasms, and muscle weakness. What is the point of the EMG anyway? I was told I don't have CIDP. Obviously not yet but the point of coming to the doc is to stop the progression. The repeated EMG tests will just monitor your progress while your condition just gets worse. It doesnt really solve anything.

I am scheduled for more bloodwork this week and a brain/cervical MRI. I just don't get how my muscles seem fine according to the EMG but I still feel weak. But wouldn't I feel pain if there was something wrong with my spine or neck? Like if I slept on it wrong which caused this to start, I for sure would have felt some pain in the morning.

On another weird but good note, I had knee reflexes today. Very strange because 4 days ago the doc hit it tons of times but couldn't get it to budge. Maybe was hitting the wrong spot.
When I had my EMG done the so-called neurologist told me that he didn't see any neuropathy. Because of that he said it was probably small fiber neuropathy. I have had blood work numerous times, a cat scan, MRI, and an EMG. I'm done with all that, and just keeping informed here on these boards. I've made many adjustments as far as nutrition with vitamins and supplements. I love that I am able to connect with so many supportive people here.

My PCP told me it's called idiopathic because the idiot doctors don't know how to handle it!!!
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