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Old 03-24-2015, 11:18 AM #1
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Originally Posted by baba222 View Post
Hello,
So, this morning for the first time when I got out of bed (after sleeping 12 hours) I was dizzy for about 15 seconds.
I have small fiber neuropathy that is sensory now in a big way. I have had some urine accidents but the doctors have not blinked at this and one Neurologist said it was unlikely that it has gone to my organs.
At what point do you know if it has gone there?
TIA
Have you been tested for POTS? A quick home test is to measure your heart rate when you are lying down and then measure it again 2 minutes after standing up. POTS is a cause of SFN and autonomic issues like bladder.

Are your bladder symptoms only leakage or do you have urge and pain issues as well?
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baba222 (03-25-2015)
Old 03-25-2015, 01:53 PM #2
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Have you been tested for POTS? A quick home test is to measure your heart rate when you are lying down and then measure it again 2 minutes after standing up. POTS is a cause of SFN and autonomic issues like bladder.

Are your bladder symptoms only leakage or do you have urge and pain issues as well?
Accidents. No pain. Urinate hugs amounts compared to before.
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Old 03-25-2015, 03:08 PM #3
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Accidents. No pain. Urinate hugs amounts compared to before.
Any urge to go just before an accident?

Polyuria (too much urine volume) has many causes that may link to SFN including diabetes or pre-diabetes.

You might want to check your daily urine volume. I think above 2.5 litres is polyuria.
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Old 03-25-2015, 05:26 PM #4
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Are you having episodes of vertigo (feeling like the room is spinning) ?
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Old 03-25-2015, 08:43 PM #5
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Are you having episodes of vertigo (feeling like the room is spinning) ?
No. But dizzy getting out of bed.
Thank you for responding.
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Old 03-25-2015, 09:32 PM #6
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It was just the one time, right? I wouldn't worry unless it is a problem that continues to occur. MrsD made good points about that much time sleeping and becoming dehydrated, which would of course make you dizzy in this situation (just getting out of bed).

If it does happen more often, then you should do some self orthostatic checks (BP's laying down, then sitting, then standing) and see if your systolic BP drops more then 20 points.
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Old 03-25-2015, 09:53 PM #7
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It was just the one time, right? I wouldn't worry unless it is a problem that continues to occur. MrsD made good points about that much time sleeping and becoming dehydrated, which would of course make you dizzy in this situation (just getting out of bed).

If it does happen more often, then you should do some self orthostatic checks (BP's laying down, then sitting, then standing) and see if your systolic BP drops more then 20 points.
Thanks so much en bloc. I did the BP checks after gwtting a good cuff and there is dropping of both diastolic and systolic.
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