Hi Emily,

Sorry you find yourself here. You're in good company, and many of us are idiopathic just like you (so far).

One thing you might want to look into while you're waiting to see the neuro is Alpha Lipoic Acid, or the more bio-available version R- Lipoic Acid. Some people think it's helped their neuropathy symptoms, and I guess I'm one of them. Nothing else has made a dent as far as I can tell, but I'm pretty sure my nerve pain dialed back a notch when I started on it last summer. You can read about it here:

http://umm.edu/health/medical/altmed...phalipoic-acid

The best thing you can do for yourself right now is anything you can to keep your anxiety levels down. I know that's really difficult because I was right there with you a year ago, but try. Anxiety will make your symptoms ten times worse. If you're good at meditating, do it a lot. Try a warm soak in an epsom salt bath too. Some people with PN can't tolerate a hot bath, but it feels great to me.

And here's something else you can try:

http://www.amazon.com/Morton-Epsom-L...om+salt+lotion

This is the R-LA I take:

http://www.amazon.com/Doctors-Best-S.../dp/B000I4C19G

If nothing else, trying this stuff will make you feel like you're doing something.

And BTW, I'm right there with you on not wanting to medicate to just deal with symptoms. I was on a gabapentin for a few months, but have gone off it now.

Janie