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Old 04-01-2015, 02:32 PM #1
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which is why i noted you were the first i came across
....its your case not anothers
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Old 04-01-2015, 02:40 PM #2
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which is why i noted you were the first i came across

....its your case not anothers

No you said that I thought my PN symptoms were caused by anxiety which I never said.

You must not pay much attention cause I've been on here for less than a month and seen multiple posts that state anxiety can make the symptoms worse.
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Old 04-01-2015, 03:33 PM #3
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if you read my post correctly you would note i said you believe your pn symptoms were caused by anxiety. i never said you believe your pn was caused by anxiety. you said once your anxiety levels went down your pn symptoms have virtually vanished. Quote from 3-25-15 " So my EMG was completely normal and since my EMG and the normal test my "neuropathy" has pretty much lifted!
I hope it stays like this but it appears there is definitely a psychosomatic component to my symptoms. Worrying and focusing on it made it worse and forgetting about it makes is virtually vanish."

of course i have read of anxiety making symptoms worse but not to anywhere near the degree and quickness as has happened with you. I have never read of anyone attributing nearly the entirety of their pn symptoms to anxiety as you have.


on a side note i dont understand your hostility. you have a very abrasive personality. i wont get into it further with you here, though i could believe me.
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Old 04-01-2015, 03:57 PM #4
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Hi
I am going to have to request that this argument end please.
If members want to discuss the pedantics further, please do so in PM. Please remember the guidelines apply to PMs as well though

It is not fair to the OP to have the thread take this turn.

thanks
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Old 04-01-2015, 07:26 PM #5
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Default So sorry

Hi there,
I agree that maybe starting all over with another pcp could be worth it, if you can.
One of my greatest disappointments personally was how I was disrepected as a neuropathy patient.
My husband received more respect as my caregiver (unable to drive and on major medication now due to the sfn).
I had to constantly appear like I was not in agonizing scary nerve pain.
Is there anyone who can also go with you to your visits?
I am so sorry that you are being treated this way.
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Old 04-01-2015, 08:13 PM #6
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Default I'm sorry as well.

I was treated very poorly and disrespected by my HMO as well. And I'm a very calm, analytical, and emotionally stable person who isn't easily rattled. It can happen to anyone.

When you change PCPs, a good one will evaluate you based on what they see and believe. The won't go off another PCPs evaluation that your symptoms are due to anxiety.
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Old 04-02-2015, 07:49 AM #7
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Default And just to clarify--

--neuorpathy,as in "damage to nerves",is, in my view, very unlikely to be caused by anxiety; the mechanisms by which that would conceivably occur do not seem to have sufficient connection.

I don't doubt, though, that anxiety can be at the root of, or exacerbate, symptoms of parastheses, tingling, etc., that can be confused with those of neuropathy. But, of course, the same can be said for a lot of conditions that produce those kind of symptoms--calcium deficiency, peripheral artery disease, conditions of the central nervous system, hypoglycemia--in that these are not caused by peripheral nerve problems per se, but can cause symptoms that feel like such problems.

I also don't doubt that anxiety can make neuropathy, or these neuropathy like symptoms, worse, at least perceptually. What especially contributes to this, though, is the tendency of far too may laypeople and physicians to very quickly go to a "mental" explanation for such symptoms that seem to have no directly discernable cause. There are a lot of studies out there that indicate that while a certain percentage of neuropathies remain idiopathic, full investigations into cause can cut way down on that percentage, but often, due to time, knowledge limit and cost/insurance considerations, such full investigations are not undertaken.
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Old 04-04-2015, 12:41 AM #8
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Quote:
Originally Posted by baba222 View Post
Hi there,
I agree that maybe starting all over with another pcp could be worth it, if you can.
One of my greatest disappointments personally was how I was disrepected as a neuropathy patient.
My husband received more respect as my caregiver (unable to drive and on major medication now due to the sfn).
I had to constantly appear like I was not in agonizing scary nerve pain.
Is there anyone who can also go with you to your visits?
I am so sorry that you are being treated this way.
thank you for the response, I went onto another forum, where i heard a person who was totally ignored by thier doctors, despite that she had pain and osteoperosis, the doctors think she is a mental case, and she said they think she is only looking for attention, or for drugs.
Thats what my pcp thinks, she dint think its lymes disease, i mentioned a month ago. i forgot to mention my pins and needles have now some random joint pains, and cold feeling, and internal loss of sensations are still troubling.
I feel like she was being dismissive/ignorant to my symptoms, because i told them about my kaiser records, she went through all 79 pages(i never knew it was that extensive), and stated that i went to many different specialists(2 different audiologists, 2 different ent on multiple visits(nosebleeds), A neuro doc(movement and disorder specialist,),multiple pcp visits, possibly an oncologist, because i thought i had lymph glands that were swollen between my hips(2007), dermatologits multiple visits(alopecia areata, steroid injections), had an mri ekg(checked by a cardio and pcp). of course it all happened between 2012 dec and 2013,summer.(some of the visits were years before though.

She called out of the blue last friday, and dismissed my lyme assumptions, and keep pointing it, from her own words(can it be from stress) she said the same exact thing more than a month ago. I am being treated like attention seeker or a drug junkie looking for drugs. I have seen your posts, and it took you so many tests and docs to finally get to the actual diagnosis.
One of my ENT at kaiser was the most ignorant of all the docs, he totally dismissed i had any nasal problems, from nosebleeds, when i switched ent, behold she found the blood vessel that was the cause, in addition allergies(i supsected for many years). This took 4 years to diagnose.

@utgrad, i dont see how your neurologist thinks MS is better than PN, MS is very debilitating with multiple neurological symptoms. and it requires immunosuppresive drugs. I think that doctor is ignorant of ms sufferers.
@glenntaj, thats what they seem to think, I think it gives them an easier scapegoat, or they dont have to try to hard with your case. Its easy to label someone has mental problems, then actually find out if they have the cause of neuropathy. some doctors are blatantly lazy, and dont want to do extra paperwork.(Doctors have to do write up on patients of every visit, what type of tests they issue, drugs prescription, examination, what did they find,,,etc)
@echoes long ago, I HAVE heard of anxiety worsening symptoms, but never causing it. My doctor seems to think like that though, anxiety,strees depression=cause of neuropathy, or percieved neuropathy.)

@Healthgirl, im pretty sure my symptoms are not mentally related like the pcp said, because i developed it suddenly while under the effects of diphenhydramine, dxm, paracetimol, phenyleprine, and it progressed to full myclonic jerks(of legs with restless leg syndrome),(shuddering without a stimulus), and hypnic jerks, random and increased frequency of twitching. I was not even stressed. loss of sensations i cant even fake it even if i wanted to, like people with diabetic neuropathy, they lose thier sensations of thier organs. I even got so bloated, from eating certain things, i couldnt even sleep. This happened all at once, though the loss of sensation i noticed weeks later after loss of smell. Loss of sensations is anything internal, this includes sensations that people take for granted,(tiredness, out breath feeling,,etc)

Last edited by Neuroproblem; 04-04-2015 at 01:01 AM.
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Old 04-04-2015, 07:21 AM #9
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i think it is awful the way you are being treated. you wont be able to establish any type of working relationship with a doctor like that. i had a really good pcp for 10 years who moved to ohio in 2009. since then i have had 5 and this last one i dont think is going to work out either. i dont know where you are from but in the US in some parts of the country a psychogenic diagnosis is much more common than in other parts. In the south particularly it seems to be used more than anywhere else. In my opinion very innaccurately.
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