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Old 04-06-2015, 05:57 PM #13
bluesfan bluesfan is offline
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Join Date: Jun 2014
Posts: 733
10 yr Member
bluesfan bluesfan is offline
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Join Date: Jun 2014
Posts: 733
10 yr Member
Default The quest continues . . .

Following my original post last Thurs about trying to figure out the B12 enigma.

Tues. 9.30 am – wasn't expecting results too early because of the holiday. Receive text from my GP – I quote: “B12 is good and higher than in January.” That's it - no number, no suggestion for any further tests etc. I guess it's the first day back after a long weekend and she's bound to be swamped. But as MrsD has taught us it's the numbers that are relevant.

Somewhat reluctantly I turned to another option - get the results myself online. Not sure if this is something the US and elsewhere use regularly and take for granted but it's still relatively new here. I won't go into details here or the reasons why I resisted accessing it up til now. Some months ago, the medical practice I use, tried to get me to register and gave me a password – fortunately due to my general clutter and disorganisation I hadn't thrown out the scrap of paper with it on … and it still worked.

So here's the numbers – mine are in the International Standard – Those in brackets are the US equivalents to make it easier for those in the US to compare. I also put in a result from 5 years ago to show the decline.

Date: B12 Result:
'normal' range 140–650 pmol/L (200-900 pg/ml)
31/3/2010 437 (592)

20/1/2015 169 (228)

2/4/2015 211 (290)
Hope I haven't made any glitches with this and it makes sense to you. (sorry the spacings don't seem to come out as I type them)

I know MrsD and others stress that B12 ideally needs to be above 400 pg/ml (295 pmol/L) but how do I convince my GP of this?
I also found online, which she didn't mention in the text, is that my Folate is high: 50 nmol/L (range 7.0 – 45.0 nmol/L) (= US 22 ng/ml - range 2.7 -17.0 ng/ml).
I did text her back pointing this out but not sure if their text alert system is only one way and doesn't accept incoming texts.

I'm dreading having to try and explain this all over again to the endocrinologist and neurologist – that's if I now even get to see them. I did think over the weekend that even if they do continue to tell me that my B12 is fine I will still start supplementing with or without their agreement – it would just be reassuring to be able to get the tests that help pinpoint a possible cause.
Would appreciate anyone's input. Thanks for reading.
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