I'm terribly confused just now. After a bout of influenza A and a chest infection my small fiber neuropathy symptoms have progressed as far as the top of my thighs - giving a prickly wet sensation from my ankles up to just beneath my groin. I have awful throb in feet, inner ankles and up through my shins into my knees and similar in hands, wrists and around my elbows into my upper arms and shoulders.

Alongside this I'm having a worsening of vestibular issues (dizziness), an unpleasant ache in my jaw and ears and on the bridge of my nose. I haven't had a nose bleed or sores for a few weeks but I have spells of these and I have completely lost my sense of taste and smell.

Someone who really knows their stuff has suggested that I might have Wegener's Granulamatosis - a type of Vasculitis. I don't see much on this site about Vasculitis induced peripheral neuropathy? Is it different in the way it manifests itself to other forms? Is it progressive usually or is it typically milder can anyone tell me?

I don't have skin involvement or kidney problems and my rheumatologist seems content to accept the SFN as part of my RA. But I'm not so sure because of the systemic problems but lack of joint swelling. I'm due to start Imuran next week as long as my chest X-ray is clear and my white blood cells are normal. I'm really hoping it helps the small fiber neuropathy and the ENT issues too - regardless of whether they are part of my RA or of a vascular disease process. It would be good to learn more from anyone who suffers from SFN as part of a Vasculitis disease. Mat