Correct, Beatle.

Thanks En bloc. I am wondering if at 2.5 years post diagnosis, it would make sense to see one. I never have. I have mentioned it to my PCP but was told "they're just going to want to repeat a bunch of expensive tests to confirm what we already know, that you have peripheral neuropathy and it is incurable".

I've heard the "expensive" remark a few times and I do not understand it. So, because they are costly we should not do them? Why were they developed if they wrote going to be too expensive and therefore not utilized?

Anyway, should I consider seeing a rheumatologist?

They are notorious for repeating and running numerous labs/tests. But they will be looking at the autoimmune side of the problem (to determine if there is an autoimmune issue)...probably not what your neuro or PCP has explored.

I would still check one out, if I were you. If it's autoimmune based, then the signs would still be there 2.5 years later (not like AI disorders disappear).

The 3 rheumatologists I have seen are useless for PN of any cause. They deal with inflammation of joints and tendons and management of medications for inflammation and immunosuppression.

If nerves are involved they will always refer to a neurologist or neurosurgeon.