Reply
 
Thread Tools Display Modes
Old 04-08-2015, 05:27 PM #1
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

Quote:
Originally Posted by linter View Post
I stand up paddle surf, in the surf (ie, in waves, not flatwater), almost every day, for 2 hrs at a time, if not a little more. The Dr does not want me to do this, and I suspect I know why: at the end of those two hrs, I go straight to bed and/or mope around the house the rest of the day, too exhausted to move.
But, it's how I choose to deal with my disease. Surfing is what makes me happy -- and happy beyond words -- so why would I want to cut down on it, knowing that my disease is going to make me stop at some point anyway?
And, yes, there are times, usually at the end of the day, when my feet are burning to high hell and are prickly numb like no one's business and I swear that I'll take it easy and not surf the next day. But then the next day arrives, my feet seem somewhat better, so off I go, without fail, to catch waves.

(Here is a story I wrote about my case of CIDP and addiction to surfing: http://www.outsideonline.com/1922561...ithout-feeling )

One thing surfing has not done is increase my muscle mass. Due to CIDP, my leg muscles are almost entirely atrophied and my arms are skinny as toothpicks. That said, I have to feel that without surfing I might be even worse off than I am.

So, those are my thoughts, for what they're worth.
This is somewhat the way I feel. I loved to hike and walking in the woods makes me happy so I try to do as much as I can. I know I won't be doing it much longer. At the end of a walk my husband has to lift my feet into the car.
It is basically impossible to increase muscle mass with the disorders that cause atrophy. Mine is hereditary. Exercise may slow the rate of progression down a little

No one here is saying that you shouldn't exercise if it causes no ill effects, just that it may not be the panacea that it has come to be regarded as by doctors and the popular press.
Susanne C. is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Flying makes it worse, lots worse Maryb1953 Peripheral Neuropathy 12 02-21-2014 03:20 PM
Getting scared--which makes it even worse! crmak Myasthenia Gravis 4 08-27-2013 02:07 PM
Weather makes us worse? cyclecrash Traumatic Brain Injury and Post Concussion Syndrome 4 12-05-2012 03:07 PM
Elbow pain, what makes it better and what makes it worse ? hellothere Thoracic Outlet Syndrome 2 07-26-2011 07:51 PM
Curcumin makes PD worse?? togo Parkinson's Disease 18 05-03-2010 01:02 AM


All times are GMT -5. The time now is 02:32 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.