Did any of y'all get a paraneoplasm blood test as a part of your PN work up? Wondering if this is standard or only if a malignancy is suspected.


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I don't think it is standard. You can ask for it, if you are worried.
I wouldn't ask just yet... wait and see what develops.

Lung cancer, ovarian cancer, and some bone marrow cancers can cause paraneoplastic PN. But it is not really that common either.
It tends to be a more dramatic presentation with severe symptoms.

Thanks

Are you talking about the neurological symptoms being more severe or the actual malignancy?

The PN symptoms are fairly severe...fast onset, etc.

http://en.wikipedia.org/wiki/Paraneoplastic_syndrome

Thanks MrsD...in your opinion based off what I shared on here do I fall outside the severe category?

You are still running, working and have times with little pain?

That would not be possible with a paraneoplastic neuropathy.

more here:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1736440/

Boom!! Thank you for your help.

I was given a paraneoplastic panel.
Apparently, a neuropathy can start before the cancer symptoms start, so if something is found in that panel, you may be tested for various types of cancer.
I went through numerous tests to rule out cancer because a VGKC anti body was found. I did not end up having any type of cancer.

[QUOTE=UTGrad;1134449]Did any of y'all get a paraneoplasm blood test as a part of your PN work up? Wondering if this is standard or only if a malignancy is suspected.


I did get paraneoplasm blood testing done, but that was when my primary symptoms were muscle twitching/cramping that had no other apparent neurological cause. I don't think it is a standard test for general PN symptoms.

i think you mean paraneoplastic test. paraneoplastic syndrome is distinct for the type of cancer causing it, some can overproduce hormones or neuropeptides like serotonin. paraneoplastic syndrome causes other symptoms other than neuropathy, and they are severe, and has to be assessed by a oncologist, endocrinologist, and technically is not a PN cause, PN is probably secondary to the cancer, if it is suspected. Paraneoplastics are pretty uncommon unless its in an endocrine tumor, that secretes substances., but the OP runs everyday, which can cause neuropathy, running show be done a few times a week. All that constant pounding on your legs, and spine when running is not good.