I let my neuro know but when my PN symptoms started my chin started twitching something crazy. I'm an account executive and when I would be in front of a client and my chin started twitching I was wondering if they could see it lol

Thanks for posting this - after some of the discussion over the weekend I was about to ask the same thing. My symptoms started with stiffness, fasciculations, and tingling. This progressed into cramping and possibly myotonia. (This lead the first neuro I saw to test for Muscular Dystrophy.) Then the feeling of weakness and heaviness in the legs. Most of these things started to clear up when I went on Gabapentin. Then the foot burning started.

It is interesting that quite a few others seem to have developed fairly similar symptoms to what I did. Yet, three neurologists including two neuromuscular specialists have said they can find no neurological cause for my symptoms.

I think a lot of you know just how I feel right now. Its frustrating and scary when you know something bad is going on inside of your body but the Doctors can't help you or don't even feel there's anything wrong with you.

Yes, yes, yes!

Before I had the neuropathy, I can't ever remember as an adult being essentially called a liar or worse, mentally ill.

No neurologist believed my symptoms before the skin biopsy. Folks here could tell me what I had. But very well thought of and even famous doctors told me I did not have neuropathy.

My husband and I spent thousands of dollars traveling to other states to be told that my symptoms were not neurological in nature, blah, blah, blah. A wonderful aunt told me that they should have seen me before my symptoms and they would definitely believe me.

My family doctor and a kind female internist believed me. And of course, folks here on this board.

I hope you can stay strong and remember that you are the only one that knows your body.

Yes, that seems to be a common story among people on this board. Fortunately, my symptoms are not that sever (yet), but they are getting slowly worse. I'm continuing to see the Doctors, and will push for more testing, etc. to identify what is going on and why. In the meantime, I am continuing to pursue dietary improvements and vitamins/supplements to see if they help. I'm also seeing an alternative medicine practitioner who is using a combination of acupuncture, cold laser, massage, and essential oils (not much success with that stuff, so I may be discontinuing it soon)

Like many here, I have a great job, but it does require a lot of walking, climbing (stairs and ladders), etc. One of my biggest fears is becoming too sick to work - but not sick enough to qualify for disability benefits.

Sounds like you have a supportive husband (and I have a supportive wife). That's one thing to be thankful for as all this plays out.

Thats what im told, is it stress,(therapist is reccommended". They think patients who complaining about neurological problems are druggies or some kind of mental condition. My pcp, thinks its all in my head, the suggestion of a therapist is evidence of that, furthermore, she only referred a opthamologist, as she dint believe in my other symptoms, though i did complain about vision problems, i was more concerned about my loss of sensations. which i still have.

Good to know. It just seemed like no one was mentioning this symptom and I was curious. I will try the magnesium again though I have tried some in the past. I do, however, think there is a difference between "everyone gets twitches" and the type of fasciculations that I experience and it sounds like others do too. True, everyone gets a twitch here and there, now and again but I am referring to a much more persistent type of fasciculation. Along with this, I too have experienced cramping in my feet - sometimes lasts all day and nothing improves it.

Magnesium citrate makes a difference and improves this symptom for me.

I don't know anyone that gets fasiculations besides an aunt who has diabetes and a host of other problems. I just recently found out about her.

When I first had them, I filmed them and then showed the video to people. My doctor said that they can come with small fiber neuropathy.

Several friends and family said that they never had that. Cramps yes, but not fasiculations.

I have been taking magnesium due to folks' suggestions (thank you neurotalk) here and that has helped me. I still get them, mostly when lying down.

Until I developed peripheral neuropathy and had fasciculations myself, I never knew anyone else who had them or who talked about it. Fasciculations talked about here involve a duration over a period of time with relative frequency, with no other cause such as over exertion. It doesnt refer to a twitch here or there.
For people with peripheral neuropathy it signals that there is involvement of the motor nerves which are affecting the muscles.

I did work where there were periods of time of extreme strenuous exertion and high stress and never had them before my feet started going numb. I never heard of anyone at work having them either. I dont think they are all that common.

I do know people that have twitching that lasts but eventually goes away. Again I think its more common but some people simply don't talk about it. When someone asks me in the store or at work "how are you doing" I don't reply "well I'm having some persistent fasciculations, how are you doing?" lol

My sisters, wife and mom have had fasciculations that simply go away with time.